Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Hi,

My husband experiences the same symptoms after his Octreotide injection. Bad diaree, fatigue, fevers, vomiting, shivers, and overall weakness. This can last from 5 to 10 days.
When we discussed this with the oncologist, she mentioned that if he is not getting this, he will surely pass away as this injection assist to stop cancer growth and body pains. He has carcinoid tumor cancer (4th stage).
He will go tomorrow for his 7th injection.

I had Sandostatina shot every 4 weeks (18 doses).
Around 4th I had several stomach pain, vomiting, fever.... it happens just twice.
The other 16 doses had the "common" symptoms

I agree with Sophia... ask questions here. We are all in the same boat but have different paddles. I know so much more from asking.

GM
Also stay connected to this site
I was so in the dark and reacting in circles in the beginning
Go on line to the support group meeting ask questions
Everyone and everything to hear brings you closer to not feeling helpless

Hi
I had an exceptional NET specialist who started me Lanreotide after 3 injections the side effects were diarrhea to the point of having to wear a diaper bloating nausea sweating major fatigue and brain fog
I had no symptoms before I started
I had to stop
Went to another oncologist and got Octreotide which for the first 2 months were ok
But then slowly started to effect me
My 5th injection gave me an infection at the injection site and after that was all down hill
It never gave me diarrhea but gave me severe carcinoid symptoms to where the 9th injection I thought I was having a stroke
I stopped
I am going back to my original NET team because they are exceptional and my liver is now compromised from either the treatments or the liver embolization I had in January to take the tumor load off the right side of my liver
I haven’t had any injections in 6 weeks and I am feeling wonderful
I have metastatic liver NET carcinoid of unknown origin
There are people that have taken the injections for many years without side effects
You won’t know if you don’t try
Good luck

I’m so glad you posted this.

I receive octreotide injections with my PRRT treatments. I had my third round of PRRT and third octreotide injection early this month. I believe that lanreotide and octreotide are similar—and I, too, started having abdominal pain and cramping (that actually felt like menstrual cramps) earlier this week. I also have noticed some queasiness if I’ve gone too long without eating or if I’ve eaten the wrong thing—generally anything too heavy or greasy, in particular.
I’m glad I’m not the only one.

Dear stevestenberg31,
I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with similar symptoms/side effects, but only on the day of inj and maybe 1-2 days after. Sharp pain( cramps), nausea, vomiting. Then all is well until next time.
But my ChG A went from 182 after surgery to 56 at the second injection!
take zofran (ondansetron) right before inj. Crackers and swiss cheese saved me.
Keep fighting! And may God help us all!