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@pavlina60

@sophiarose - are you on different treatment now that you stopped Lanreotide? And what?

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Replies to "@sophiarose - are you on different treatment now that you stopped Lanreotide? And what?"

I went on to Ocreotide
The first 3 injections I had side effects that weren’t so bad
The 4 th injection put me in the hospital because my hip swelled from an infection at the injection site
After that the side effects got worst with every injection
Until my 9th injection landed me back in the hospital I thought I was having a stroke my liver enzymes were extremely elevated and my MRI showed a fatty liver which I never had before which is a different effect from the Ocreotide
I stopped my tumors were still growing and more were arising
I am scheduled to get a left side liver embolization on 6/13 I had my right side done on 1/12 and it was successful
Fingers crossed
Time will tell what will be now that I am not on anything