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Doctors resist prescribing LDN

Posted by ropnrose @ropnrose, Dec 27, 2024

I've read posts in this support group about the success that patients have had with using LDN to reduce/eliminate Prednisone usage. I'm currently on 8 mg./day (down from 60 mg. in late July). I started getting body aches again at this 8 mg. dosage, but they are tolerable. I don't want to increase my prednisone. I asked my rheumatologist if she would prescribe LDN to me. She informed me that they do not prescribe LDN, but I am welcome to try it. She told me to ask my PCP. I asked my PCP and she wouldn't prescribe it either. How did you convince your doctor to prescribe LDN?

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smoore6480 | @smoore6480 | Dec 28, 2024

Both my PCP and Rheumatologist were positive about LDN. Since these doses have to be compounded I went on the internet and ordered them. Cost is about 30.00/month.
Both carefirst specialty pharmacy and ageless RX offer this and I have used both. They have a Dr you zoom with to get a prescription. I am starting with 1.5 mg and working my way up to 4.5 over the period of 1 month.
Along with methotrexate it is helping me taper quicker . Too soon to see if it is helping yet or not.

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pdxmac | @pdxmac | Dec 28, 2024
In reply to @smoore6480 "Both my PCP and Rheumatologist were positive about LDN. Since these doses have to be compounded..." + (show)
@smoore6480

Both my PCP and Rheumatologist were positive about LDN. Since these doses have to be compounded I went on the internet and ordered them. Cost is about 30.00/month.
Both carefirst specialty pharmacy and ageless RX offer this and I have used both. They have a Dr you zoom with to get a prescription. I am starting with 1.5 mg and working my way up to 4.5 over the period of 1 month.
Along with methotrexate it is helping me taper quicker . Too soon to see if it is helping yet or not.

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Please keep us posted on whether it is helpful. My docs won't prescribe it either. But if I keep seeing anecdotal confirmation that it is indeed helpful, I'm going to push for it.

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