Doc adding Hydroxychloroquine to my Remicade - anyone else on that?
I am pretty well controlled with Remicade for 6 yrs after cycling through Methotrexate, Humira and Enbrel over the previous 6 years. I’ve recently had a few more flares than what is normal for me and he wants to add Hydroxychloroquine. The side effects sound dreadful. I particularly hate GI side effects.
What am I likely in for?
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I have been on hydroxychloroquine for 6 years. It took 5 months to kick in but I have had no side effects. I get eyes checked every year and I’m good so far
I have been on Plaquenil since 2010. It is a lifesaver especially with rash outbreaks. I have a field study test done yearly witn no issues. I have no side effects, now. It took awhile to really work and help with inflammation.
Good luck!
🐝 KIND
Many thanks!!
Thanks!
I've been on it for two years. I have mixed connective tissue disease, and the medication has had no side effects, no effect on my eyes, and I've had no progression to serious symptoms for the two years I've been sick. Good luck to you.
Plaquenil has been very helpful for me.
I can only take the brand name as the generic gives me hives and digestive issues.
I have been on for several years and so far have not had any eye problems.
If you are concerned about the digestive issues after taking the generic …. consider the brand name. If your doctor prescribes it as brand name necessary, your insurance provider might pay for it.
I too, was hospitalized for dermatomyositis as I was not properly diagnosed at the start of the disease which came on very fast. I began with a rash that quickly spread over my arms and legs, back, neck, hands and head. When in hospital, I was put on IV prednisone and Methotrexate. I was switched from Metho to Mycophenolate with the addition of Hydroxychloroquine. My body did need to adjust to this new combination of drugs. What I have experienced is some gut issues, mostly constipation but have adjusted and take MiraLAX as needed. skin is mostly under control with occasional flareups.
I hope this helps. I wonder if anyone can advise me on the skin pain and how to handle it. it feels like a sunburn and is so very painful ALL the time. Anyone have any suggestions?
Thank you
Juls
I was put on it with Prednisone and it knocked my lupus into remission. I had bad constipation but I used Miralax. Ten years later I was actually diagnosed with Myasthenia Gravis instead of lupus by a blood test. I had also been diagnosed with Mixed connective too. I have severe osteoporosis so can’t take steroids anymore and am on other meds
Thanks everyone for your helpful comments.
That is encouraging. I also have microscopic colitis and on a specific steroid for that - and after a horrendous period to get that diagnosis and treatment, I am very cautious about any drug that has intestinal side effects. So very good to hear that you did not.
Thanks!