Do you have Crohns and no tolerance for drugs to treat anything?

Posted by peni @peni, Aug 13 4:17pm

Before I was diagnosed with Crohns, it was called severe food allergy and I went on a rotation diet. It is the only thing that helps now, but is very hard to follow long term. All drugs give me the worst side effects or set off the Crohns.

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

John, Volunteer Mentor | @johnbishop | Aug 19 8:42am

Hello @peni, Welcome to Connect. It has to be extremely difficult when you have a condition like Crohn's and the medications used for treatment cause even worse side effects for you. I'm not sure if you have seen the other discussions on Connect where members with Crohn's have shared experiences with treatments. Here's a search link that lists the different discussions - https://connect.mayoclinic.org/search/discussions/?search=Crohn%27s%20treatments.

If you haven't already seen it, the Crohn's & Colitis Foundation has some information on diet and nutrition that might be helpful - https://www.crohnscolitisfoundation.org/patientsandcaregivers/diet-and-nutrition. They also have some information on the different treatment options - https://www.crohnscolitisfoundation.org/patientsandcaregivers/what-is-ulcerative-colitis/treatment-options.

I did see a discussion you might find interesting - Has anyone done intermittent fasting for PSC/Crohn’s/Diabetes?: https://connect.mayoclinic.org/discussion/has-anyone-done-intermittent-fasting-for-psccrohnsdiabetes/. Have you tried intermittent fasting?

catherine1290 | @catherine1290 | Aug 20 6:06am

I tried 3 drugs for Crohn's before I found the right one... You didn't mention which drugs you've tried. Have you tried a Biologic? I now have taken Stelara for 7 years with no side effects. Keep working with your doctor and don't give up!

Lisa Lucier, Moderator | @lisalucier | 5 days ago

@peni - wondering how you are doing with the rotation diet and your Crohn's?

suetex | @suetex | 2 days ago

I don't care who you are, if you have Crohn's, you need to look at the web sites devoted to Low Dose Naltrexone. Read about it and find a doc who will write a script. It will help over 80% of Crohn's patients. I had it for over 40 yrs and now I am medication and symptom free. Have been for several years. I take 2 mg because 4mg didn't seem to make any difference. So 2 mg is all I take. I had a rheumatologist who didn't beleave in it but it was too small an amount to hurt and wanted me to be happy, so she wrote the script. Any kind of dr. can write it. It will take a compounding pharmacy however, because the dose is set for you. I have no side effects.

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