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Do I need a Urologist?

Posted by briang1958 @briang1958, Jan 30 7:55am

I keep reading about people visiting a Urologist after surgery.
I do not have a Urologist on my Care Team any longer.
The Urologist at the VA said there is nothing they can do for me at this point as he jokingly said, "We just cut things out and you no longer have anything to cut".

Prostate removed in 2014, 39 SRT in 2015. Currently rising PSA ~1.0 after 2 SBRT treatments (1 on each iliac node). Another PSMA PETScan being ordered.

I'm starting with a new Oncologist in a week and will ask but looking for thoughts here.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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heavyphil | @heavyphil | Jan 31 7:29am

He’s mostly correct, but you might need him if you ever develop a urinary complication down the road.
Now mostly you will be in the hands of oncologists and radiation oncologists. Best,
Phil

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jcf58 | @jcf58 | Jan 31 8:42am
In reply to @briang1958 "@jeffmarc - I do not know if it was a 3.0 or 1.5, it was at..." + (show)
Profile picture for briang1958 @briang1958

@jeffmarc - I do not know if it was a 3.0 or 1.5, it was at Mayo at the request of the RO.

PSA has been rising over the last 3 PSAs. Went from .01, to 0.3 to .7 to 1 monthly tests.

Hoping that we don't see my L3 glowing, happy and sorry to have you as a reference should we go there.

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@briang1958
I just had an MRI at Mayo Rochester Friday. If you look at the test result near the bottom, it’ll show you exactly what kind of MRI you had. I had a 3 Tesla.

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thmssllvn | @thmssllvn | Jan 31 9:13am

Semi-seriously:

GUMO? Suggested new acronyms for Genitourinary Medical Oncologist?
GUPMO Genitourinary Prostate Subspecializing Medical Oncologist:
[this latter might characterize Mark Scholz MD [...associated with PCRI.org)]
...20 plus years dealing with the prostate.

Fellow of the American College of the (Genitourinary) Prostate Medical Oncology Organization FAC(GU)PMOO !?

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briang1958 | @briang1958 | Jan 31 9:36am
In reply to @jcf58 "@briang1958 I just had an MRI at Mayo Rochester Friday. If you look at the test..." + (show)
Profile picture for jcf58 @jcf58

@briang1958
I just had an MRI at Mayo Rochester Friday. If you look at the test result near the bottom, it’ll show you exactly what kind of MRI you had. I had a 3 Tesla.

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@jcf58 - Thanks

Multiparametric MRI of the prostate was performed at 3 Tesla with surface coil. High resolution T2WI, DWI/ADC, and DCE imaging with IV contrast performed.

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briang1958 | @briang1958 | Jan 31 9:38am
In reply to @northoftheborder "The "nothing left to cut" comment must have been meant as a joke. If you still..." + (show)
Profile picture for northoftheborder @northoftheborder

The "nothing left to cut" comment must have been meant as a joke. If you still have a bladder and/or a penis, you might still sometimes need help from a urologist (they treat the urinary tract, not just the male reproductive system).

I had a urology oncologist treating me for a while because of minor complications from radiation. He didn't stay as a permanent member of my team, but I can go back to him if any additional issues develop.

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@northoftheborder - Yes, VA Urologist and surly a tongue in cheek comment.

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briang1958 | @briang1958 | Jan 31 9:39am

Thanks everyone for your information and support.

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larrypt3b | @larrypt3b | Jan 31 11:54am

I very much feel the same way about my Urologist. I think he sat on the fact that my cancer could come back and is still doing so now that it has. I am going to see the Radiation Oncologist and have an appointment with Mayo to see, you guessed it: Urologists! smh. I have cancer, I want a CANCER specialist. Urologist for side effects is fine. What am I missing here? This seems like wasting time that I may not have.

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briang1958 | @briang1958 | Jan 31 2:54pm
In reply to @larrypt3b "I very much feel the same way about my Urologist. I think he sat on the..." + (show)
Profile picture for larrypt3b @larrypt3b

I very much feel the same way about my Urologist. I think he sat on the fact that my cancer could come back and is still doing so now that it has. I am going to see the Radiation Oncologist and have an appointment with Mayo to see, you guessed it: Urologists! smh. I have cancer, I want a CANCER specialist. Urologist for side effects is fine. What am I missing here? This seems like wasting time that I may not have.

Jump to this post

@larrypt3b - Start a new thread, you'll get better responses.

You need to get an Oncologist is all I can say. Mayo was easy to get an appointment with an RO.

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