Do I have time to wait before a atpical ductal Hyperplasia excision?

Posted by 1buffster1 @1buffster1, May 4 11:02am

I was told yesterday I have Atypical Ductal Hyperplasia. I want to make an informed decision on which route to go. Can I put an excision off for a couple of months.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

freckle1 | @freckle1 | May 7 4:06pm

Agree. My tumour was tiny and not detectable- hiding behind the nipple. But it was removed within a week of my mammogram and ultrasound. Turned out to be very aggressive. If I'd waited three months, it would likely have spread.

1buffster1 | @1buffster1 | May 7 4:53pm

Thank you ..im going forward. Did you have to have radiation or any follow up after the excision

goldenlove2 | @goldenlove2 | May 9 10:54pm

I was just diagnosed with ADH. I had my surgery a week ago and everything was removed. I’m meeting with an oncologist next week to discuss next steps. Medication was mentioned as a possible preventative treatment. Is anyone currently on a preventative treatment program? How’s it working for you? Thanks.

Colleen Young, Connect Director | @colleenyoung | May 15 6:33pm

In reply to @goldenlove2 "I was just diagnosed with ADH. I had my surgery a week ago and everything was..." + (show)

@goldenlove2, do you know that name of the medication that is being suggested for you?

goldenlove2 | @goldenlove2 | May 15 8:28pm

In reply to @colleenyoung "@goldenlove2, do you know that name of the medication that is being suggested for you?" + (show)

No, not yet. I meet with my doctor on Friday. I’m concerned with side effects I keep hearing about. I’m going through menopause now and to have my current symptoms amplified worries me.

Colleen Young, Connect Director | @colleenyoung | May 16 4:59pm

In reply to @chitown "Thanks! Super helpful. I have my consult tomorrow at northwestern. Did you go to mayo?" + (show)

@chitown, how did the consult go? May I ask what decisions you made or are pondering?

1buffster1 | @1buffster1 | May 16 6:08pm

Just had a second consult.
I have chosen to have the excision sooner than later.
I had time to get second opinions.

Take the time to be informed about Atypical Ductal Hyperplasia, and speak to health care providers that you have chemistry with.

chitown | @chitown | May 16 6:43pm

In reply to @colleenyoung "@chitown, how did the consult go? May I ask what decisions you made or are pondering?" + (show)

Just had the bilateral lumpectomy today, actually. Will likely get a second opinion regardless of the results. Consult gave me the confidence to move forward. Thank you for following up!