Do I Dare Ask?

Posted by AL GiL @jg99t9, 1 day ago

I was wondering, and I realize I might not get the answer I hope for, but have any of you been able to go back to eating some of the foods that I love best, like: hamburgers, tacos and burritos, barbecue ribs, fried chicken, and pizza?

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Dear Al Gil,
After three Swallow Studies, a year of doing tongue/throat exercises, and much patience, the answer is "yes." It takes a good while for everything to go back to near normal--I could not speak, eat or drink for approximately one year. Now, a few years later, it is hard to remember those times. Maybe the brain blocks out the negativity...Also, check into using a "Red-Light Therapy Wand." I waved one around inside the throat area for many months and do believe it helped. You will find these devices are very inexpensive online. Best wishes to you.

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I had 30 rounds of radiation and finished July 2023. It was a struggle to eat during radiation and a few months after and I FORCED myself. I lost appetite and everything had no taste. I ate soft creamy foods for about 3 months once radiation stopped and then slowly back to normal foods. Crunchy sharp food items hurt on the way down. One year out of treatment I could eat and drink about anything I wanted. My taste buds were back to about 90% , My throat mucositis has almost gone away, Saliva production 90% and My stamina is back to about 90. Two years out now today and I can eat ANYTHING.. Hang in there. Spicy foods are waiting! God Speed

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Hey Al,
As for me it took approximately one year before I could eat oatmeal. I ate oatmeal 3 times a day for about a year and then country gravy turned into my friend. I started eating solid foods smothered with country gravy. I mean I ate more country gravy and oatmeal within a two year period than I think I ate in my lifetime.
I used country gravy on hamburger, steak, beef tips, eggs, potatoes, hash brown, anything I liked had country gravy on it…by the way, I never was a fan of country gravy before cancer!
Anyway, I’m heading towards 9 years post treatments and I still have to be very careful about eating. When I’m alone I try not to eat because of the chocking that frequently occur.
When you do try to eat make sure you take a deep breath before attempting to swallow the well chewed food. This way if it gets stuck you have air in your lungs to push it out! I have had many close calls!
One time I thought it was the end when all at once our Dutch Shepherd came running into the kitchen and launched his front feet into causing the food to shoot out….whether you’re a believer or not I believe Devine intervention occurred!
Anyway I’ve been thinking of purchasing that device for chocking, I can never remember the name of it when I try to find it? You may want to invest in one if you happen to stumble across it.
Fight the good fight,
Jody

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@thomason

Dear Al Gil,
After three Swallow Studies, a year of doing tongue/throat exercises, and much patience, the answer is "yes." It takes a good while for everything to go back to near normal--I could not speak, eat or drink for approximately one year. Now, a few years later, it is hard to remember those times. Maybe the brain blocks out the negativity...Also, check into using a "Red-Light Therapy Wand." I waved one around inside the throat area for many months and do believe it helped. You will find these devices are very inexpensive online. Best wishes to you.

Jump to this post

Thank you,
I will look into the red light therapy.

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@mojo244

Hey Al,
As for me it took approximately one year before I could eat oatmeal. I ate oatmeal 3 times a day for about a year and then country gravy turned into my friend. I started eating solid foods smothered with country gravy. I mean I ate more country gravy and oatmeal within a two year period than I think I ate in my lifetime.
I used country gravy on hamburger, steak, beef tips, eggs, potatoes, hash brown, anything I liked had country gravy on it…by the way, I never was a fan of country gravy before cancer!
Anyway, I’m heading towards 9 years post treatments and I still have to be very careful about eating. When I’m alone I try not to eat because of the chocking that frequently occur.
When you do try to eat make sure you take a deep breath before attempting to swallow the well chewed food. This way if it gets stuck you have air in your lungs to push it out! I have had many close calls!
One time I thought it was the end when all at once our Dutch Shepherd came running into the kitchen and launched his front feet into causing the food to shoot out….whether you’re a believer or not I believe Devine intervention occurred!
Anyway I’ve been thinking of purchasing that device for chocking, I can never remember the name of it when I try to find it? You may want to invest in one if you happen to stumble across it.
Fight the good fight,
Jody

Jump to this post

Thanks Jody,
It's a long struggle but I believe it will get better. Keep that beautiful dog.

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@jonesja

I had 30 rounds of radiation and finished July 2023. It was a struggle to eat during radiation and a few months after and I FORCED myself. I lost appetite and everything had no taste. I ate soft creamy foods for about 3 months once radiation stopped and then slowly back to normal foods. Crunchy sharp food items hurt on the way down. One year out of treatment I could eat and drink about anything I wanted. My taste buds were back to about 90% , My throat mucositis has almost gone away, Saliva production 90% and My stamina is back to about 90. Two years out now today and I can eat ANYTHING.. Hang in there. Spicy foods are waiting! God Speed

Jump to this post

Thank you for those encouraging words.

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