Do gastroparesis symptoms slowly creep up on everyone?

Have you tried domperidone? It helps my daughter. Some USA docs can prescribe and sometimes you need to get from Canada, but it helps her. She is also not a diabetic and the challenges you have, she has.

i was diagnosed with gastroparesis about 3 years ago (gastric emptying study). I had it several years prior, however, just went undiagnosed and YEARS ago was unable to eat fibrous vegetables things like broccolli etc. it would just "sit" and come back up hours later - totally undigested. I am managing it by dramatically changing my lifestyle both when and what i eat. Currently I am unable to eat anything solid after 2 pm. if i want to be able to lay down and sleep around 9-10 p.m. Lately things seem to be getting worse and there are some days where i ONLY eat pureed things/smoothies, frozen yogurt and nothing solid - otherwise i feel nauseous all the time. I was wondering if this is what happens - that things get worse and worse until eventually you cannot eat any solids at all and perhaps even have to get a feeding tube put in?? Seems like the gastroenterologists i have seen know "next to nothing" about this condition. One told me "you can just drink Ensure" - like it was no big deal to drink Ensure the rest of your life!!

i was diagnosed with gastroparesis about 3 years ago (gastric emptying study). I had it several years prior, however, just went undiagnosed and YEARS ago was unable to eat fibrous vegetables things like broccolli etc. it would just "sit" and come back up hours later - totally undigested. I am managing it by dramatically changing my lifestyle both when and what i eat. Currently I am unable to eat anything solid after 2 pm. if i want to be able to lay down and sleep around 9-10 p.m. Lately things seem to be getting worse and there are some days where i ONLY eat pureed things/smoothies, frozen yogurt and nothing solid - otherwise i feel nauseous all the time. I was wondering if this is what happens - that things get worse and worse until eventually you cannot eat any solids at all and perhaps even have to get a feeding tube put in?? Seems like the gastroenterologists i have seen know "next to nothing" about this condition. One told me "you can just drink Ensure" - like it was no big deal to drink Ensure the rest of your life!!

Dr. Michael Hughes did my surgery at Jewish hospital in Louisville, Ky.
His Medical group is called Vanguard.
He was great!
I will look up his phone # if you want.

I believe in my case yes 😓it’s progressing really fast. I was first having dumping syndrome symptoms (fast bowler movements), then very bad constipation (tried to manage: water intake, massages, suppositories, stool softeners but ultimately the hospital gave me Mirelax and laxatives, while giving me dicyclomine-in my case I don’t really know if it’s good idea- finally I have reduced the intake amount and increased the frequency over the day -when eating the small intake is 40% soluble solids and 60% liquid this has helped me a little) So far I have been diagnosed with HSD related to h/EDS on the spectrum and POTS subtype of Dysautonomia. I’m not sure what’s the root of everything tho. Some hypothesis from some doctors locally are:
✅that’s not gastroparesis
✅is endometriosis
✅POTS Dysautonomia
✅deconditioning
✅IBS

I’m concerned it’s that could be the NET cancer 2019 that started on the rectum is back after 2 years from the removal, other malignancy, MCAS or something autoimmune. I’m genetically in higher risk than average to melanoma, breast cancer, colon cancer afib and coronary heart deseases and have MTHFR. But we still working on figuring it out. My CT of the abdomen according to the vascular expert said I have diffused small bowel dilated, pathology said it’s just edema lymphocytic aggregates and I’m bleeding rectal a lil they said I have hemorrhoids. Back on February 2022 I got a hemorrhagic gastritis I think that was my first sign that something was not right but I was dealing with eating pain palpitations and extreme bloating. Still locally they gave me one egg after fasting from previous day 5pm (I was admitted that was the time of dinner) until 9am next day I think. I’m concerned because on March 2022 PET scan said “physiological activity” on my small and large bowels plus a suspected fibroid.

Hope everyone is doing better or getting the care needed. 🙏🏻Blessings of healing ❤️‍🩹

I have been diagnosed with GP. Mine is considered idiopathic (unknown cause) since I do not have diabetes. If you are a diabetic controlling your blood sugar will help and in most cases cure GP. However, for people like myself, there is no cure or cause. I regurgitated food for over 5 years without a diagnosis. I still regurgitate food. Going on a liquid diet and making sure my bowels are moving helps me. I eat baby food, and almond milk with pea protein, and avoid meat. There are medications that claim they help. One that many find successful is Motegrity. I had serious side effects and had to stop this med after 5 days. It is an awful disease because every social event and every Holiday involves foods we cannot eat. Stay away from fried foods, dairy, and all Mexican food and cabbage. There are other foods that are not GP friendly. The list is extensive. It is very distressing and can leave you feeling isolated and alone. Usually, after I follow my liquid/baby food protocol for 3 days I can return to eating simple, nongaseous foods in small portions. Think white. Rice, potatoes, and bread. Think fish and nonfibrous veggies. I sincerely miss eating salads and all heart-healthy foods. Try to remain calm and seek help if you become dehydrated. I hope this helped a little. My sincere sympathy. Life is not easy with GP, but remain optimistic and work to find inner happiness in a world of nausea and stomach pain. Hugs!

i was diagnosed with gastroparesis about 3 years ago (gastric emptying study). I had it several years prior, however, just went undiagnosed and YEARS ago was unable to eat fibrous vegetables things like broccolli etc. it would just "sit" and come back up hours later - totally undigested. I am managing it by dramatically changing my lifestyle both when and what i eat. Currently I am unable to eat anything solid after 2 pm. if i want to be able to lay down and sleep around 9-10 p.m. Lately things seem to be getting worse and there are some days where i ONLY eat pureed things/smoothies, frozen yogurt and nothing solid - otherwise i feel nauseous all the time. I was wondering if this is what happens - that things get worse and worse until eventually you cannot eat any solids at all and perhaps even have to get a feeding tube put in?? Seems like the gastroenterologists i have seen know "next to nothing" about this condition. One told me "you can just drink Ensure" - like it was no big deal to drink Ensure the rest of your life!!

Have you tried domperidone? It helps my daughter. Some USA docs can prescribe and sometimes you need to get from Canada, but it helps her. She is also not a diabetic and the challenges you have, she has.

I believe in my case yes 😓it’s progressing really fast. I was first having dumping syndrome symptoms (fast bowler movements), then very bad constipation (tried to manage: water intake, massages, suppositories, stool softeners but ultimately the hospital gave me Mirelax and laxatives, while giving me dicyclomine-in my case I don’t really know if it’s good idea- finally I have reduced the intake amount and increased the frequency over the day -when eating the small intake is 40% soluble solids and 60% liquid this has helped me a little) So far I have been diagnosed with HSD related to h/EDS on the spectrum and POTS subtype of Dysautonomia. I’m not sure what’s the root of everything tho. Some hypothesis from some doctors locally are:
✅that’s not gastroparesis
✅is endometriosis
✅POTS Dysautonomia
✅deconditioning
✅IBS

I’m concerned it’s that could be the NET cancer 2019 that started on the rectum is back after 2 years from the removal, other malignancy, MCAS or something autoimmune. I’m genetically in higher risk than average to melanoma, breast cancer, colon cancer afib and coronary heart deseases and have MTHFR. But we still working on figuring it out. My CT of the abdomen according to the vascular expert said I have diffused small bowel dilated, pathology said it’s just edema lymphocytic aggregates and I’m bleeding rectal a lil they said I have hemorrhoids. Back on February 2022 I got a hemorrhagic gastritis I think that was my first sign that something was not right but I was dealing with eating pain palpitations and extreme bloating. Still locally they gave me one egg after fasting from previous day 5pm (I was admitted that was the time of dinner) until 9am next day I think. I’m concerned because on March 2022 PET scan said “physiological activity” on my small and large bowels plus a suspected fibroid.

Hope everyone is doing better or getting the care needed. 🙏🏻Blessings of healing ❤️‍🩹

thanks for the info, again . I did watch some stuff online by Crystal Saltorelli - that was a good referral - some very good stuff. most of it I have learned by trial and error - over the years - but I always wonder if there is some stuff out there that I don't know! I have changed GI docs three times now - I now have one I like - but still next to no information he can provide on gastroparesis. I think you need to go to a center that specializes in it - but I have HMO insurance and it would not be covered. I also found a site livingwithgastroparesis.com that is good and this doctor Mark Cooper MD who is a gastroenterologist in Texas is VERY GOOD! Much of the stuff, as I said, I am already doing - I mostly was interested to know how progressive this disease is - like if it gets worse and worse until eventually you are on liquids only or a feeding tube.