Diverticulitis

Posted by monicajones @monicajones, May 15, 2018

Has anyone had part of their intestine removed? I have diverticulitis and sometimes I still experience discomfort and constipation.

@gailfaith

Yes, you are right about the sweet potatoes. They are far better than white potatoes for blood sugar. I am impressed with the actual experiment you did to test the two. Good detective work!

Teresa

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Yesterday I finally gave in and went to the ER. I had a CT scan and ultra sound on my left leg. Nothing. I was awakened with so much pain in my leg and I am unsure why. It feels like something is against a nerve in my leg. I cannot walk without the aid of a cane. Even with the cane, it hurts every time I use it. The pain is prevalent even when sitting. I do not know what to do. I need to get on with my life. I have a 96 year old mother that I need to care for and my husband has been diagnosed with IPF and needs me as well. The only thing they found in the ct scan was thickening of the bladder and some excess fecal matter. Any suggestions

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@frane1939

Yesterday I finally gave in and went to the ER. I had a CT scan and ultra sound on my left leg. Nothing. I was awakened with so much pain in my leg and I am unsure why. It feels like something is against a nerve in my leg. I cannot walk without the aid of a cane. Even with the cane, it hurts every time I use it. The pain is prevalent even when sitting. I do not know what to do. I need to get on with my life. I have a 96 year old mother that I need to care for and my husband has been diagnosed with IPF and needs me as well. The only thing they found in the ct scan was thickening of the bladder and some excess fecal matter. Any suggestions

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Excess fecal matter? As in: constipation? I imagine if that is the case, an impacted colon maybe resting upon a nerve that innervates your problem area and cause discomfort…. its a stretch but worth pursuing information about.

Liked by Snookie

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@monicajones

I had a foot of my intestine removed in feb. So far so good. But I just had an ultrasound last week and just found out that my liver in enlarged and fatty. I’m pre diabetic and I was told to watch my carbs and sugar. Any suggestions on what to eat and can my liver go back to normal?

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Thank you for this advice Teresa. I really appreciate it and will try the Paleo diet and water with lemon.

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@monicajones

I had a foot of my intestine removed in feb. So far so good. But I just had an ultrasound last week and just found out that my liver in enlarged and fatty. I’m pre diabetic and I was told to watch my carbs and sugar. Any suggestions on what to eat and can my liver go back to normal?

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@monicajones

Wishing you well with your new eating plan.

Please post again. I look forward to hearing from you.

Teresa

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Today, I am still suffering with the pain in the groin and lower left side. The CT scan is not clear, no abscess, actually nothing that they can pinpoint. Started on anti inflammatory med to be followed one hour before taking a pain pill. My first dosage seemed to help me walk a bit better. This morning, it is just as it was yesterday. I took the pills as directed this morning and still have the same pain. If not better by monday, the doctor is referring me to a surgeon. Will keep you posted.

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Thank you for the update, @frane1939

I am so sorry that you are still in so much pain. I do hope that you begin to get some relief soon.

Keep updating and let me know how you are doing. Wishing you well and I'm looking forward to hearing from you again soon.

Teresa

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In reply to @monicajones "Thank you" + (show)
@monicajones

I had surgery in 2005 for the removal of 3/4 of my large intestines because I had 29 polyps better to be safe than sorry. All results came back clear. Then in 2012 I had a blockage in the small intestines and had 12 inches removed. With all the surgery I have had my small and large bowls are not good and some days bed is the only place I can get any relief along with pain tablets. I am hoping someone can help me on how the handle day to day living. Thanks

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I was diagnosed back in October of 2017 and I'm now dealing with the same symptoms and discomfort less than 4 months later. I changed my diet right away back when I was first diagnosed but I must have missed something. I am on liquids ONLY right now hoping I don't have to do antibiotics again. The side effects of the two that were prescribed in October were awful-they worked, but my balance and vision were affected. I felt very sluggish and "off." I lost weight back in October and have not been able to maintain a decent weight since. I just need some input as to what I may be doing wrong to warrant the symptoms I'm experiencing. I thought I had this disease under control. Boy, was I WRONG.

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@kitten92

I was diagnosed back in October of 2017 and I'm now dealing with the same symptoms and discomfort less than 4 months later. I changed my diet right away back when I was first diagnosed but I must have missed something. I am on liquids ONLY right now hoping I don't have to do antibiotics again. The side effects of the two that were prescribed in October were awful-they worked, but my balance and vision were affected. I felt very sluggish and "off." I lost weight back in October and have not been able to maintain a decent weight since. I just need some input as to what I may be doing wrong to warrant the symptoms I'm experiencing. I thought I had this disease under control. Boy, was I WRONG.

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@kitten92 I have dealt with diverticulitis for a while. the past year I have had 4 surgeries due to it. I am almost 4 weeks out from the last surgery. Ended up having to have Deloyers procedure, in which they took part of my rectum, the rest of my descending colon, part of the transverse and then turned the transverse back down along the ascending and attached to my rectum. It is now my new descending. When the diverticulitis is flaring, clear liquids are a must. I would also say being on antibiotics. They had me on Zocyn in Dec, and it worked. Not any side effects for me. Don't wait on calling the doctor if it doesn't clear up or you could end up with emergency surgery, which is not fun. Mine resulted in a temporary colostomy bag for 6 months while they waited for my colon to completely heal.

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I am wondering if anyone else has pain in their breastbone, stomach and sometimes the chest above breastbone? I had my gallbladder removed many years ago. I was diagnosed a couple of years ago with Diverticuloses. I was told at that time, to always chew nuts of any kind really well so as not to get partially disgusted nuts in the pockets of my intestines. I have been eating nuts like almonds lately and wondered if they would give me this pain. Would Diverticuloses cause pain like I am experiencing? I had a cat scan not too long ago and was told that my stomach looks good, but that my esophagus is a little inflamed. I am taking Lazaprasole for this, but it isn’t helping me. I am also taking CBD oil three times daily @ 0.5 mg. each dose. I think it is helping as this pain goes away for a few days, then comes back with a vengeance. No Doctor has told me yet what this pain is caused from. I do have an NET in my pancreas and saw a cancer specialist about it and she said it hasn’t grown for many years so don’t worry about it. She also told me my pain is not caused by this. I feel right now like someone is stabbing me in the chest and the pain goes right into my back. It is almost unbearable at times, because it also hurts to breathe. If anyone has any ideas or advice for me, I would love to hear from you. Thanks for reading the lengthy note.

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Hi @happyat76 you may have noticed I moved your post to this existing discussion on diverticulitis so that you can read what others have experienced with diverticulitis and diverticuloses.

That pain sounds absolutely awful and it must be frustrating to be unsure of the cause.

I wanted to introduce you to fellow Connect members @hopeful33250 @suez @retrebotic @akogut @allegro @bakb @lshell @gailfaith @dbwhitted @ann64 and @tallygirl have experience with diverticulitis and may be able to offer support from their experiences.

Back to you @happyat76 How long have you had this pain? Did you do anything different with your diet, besides having nuts, before the pain started?

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@happyat76

I am wondering if anyone else has pain in their breastbone, stomach and sometimes the chest above breastbone? I had my gallbladder removed many years ago. I was diagnosed a couple of years ago with Diverticuloses. I was told at that time, to always chew nuts of any kind really well so as not to get partially disgusted nuts in the pockets of my intestines. I have been eating nuts like almonds lately and wondered if they would give me this pain. Would Diverticuloses cause pain like I am experiencing? I had a cat scan not too long ago and was told that my stomach looks good, but that my esophagus is a little inflamed. I am taking Lazaprasole for this, but it isn’t helping me. I am also taking CBD oil three times daily @ 0.5 mg. each dose. I think it is helping as this pain goes away for a few days, then comes back with a vengeance. No Doctor has told me yet what this pain is caused from. I do have an NET in my pancreas and saw a cancer specialist about it and she said it hasn’t grown for many years so don’t worry about it. She also told me my pain is not caused by this. I feel right now like someone is stabbing me in the chest and the pain goes right into my back. It is almost unbearable at times, because it also hurts to breathe. If anyone has any ideas or advice for me, I would love to hear from you. Thanks for reading the lengthy note.

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Hello @happyat76

I am glad that Ethan invited me to your discussion. Yes, I'm very familiar with diverticulitis and have had lots of experience with bouts of it. Diet and avoiding constipation are the most important factors. Also, exercise and drinking lots of liquids which helps minimize the constipation problem which leads to the diverticulitis. There are good products such as stool softeners that can be used as well. I would also like to invite @thull as she has also had diverticulitis.

I noticed that you have a NET in your pancreas. I have had three surgeries for NETs and I'd like to invite you to the Connect discussion on NETs. Here is the link, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?tab=discussions. If you are open to sharing more, how was your NET diagnosed? Do you have diabetes as a result of the NET in your pancreas?

I hope that you are able to share more. I look forward to hearing from you again. Those of us with NETs are a rare breed and we thrive on information from others who have it.

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@ethanmcconkey

Hi @happyat76 you may have noticed I moved your post to this existing discussion on diverticulitis so that you can read what others have experienced with diverticulitis and diverticuloses.

That pain sounds absolutely awful and it must be frustrating to be unsure of the cause.

I wanted to introduce you to fellow Connect members @hopeful33250 @suez @retrebotic @akogut @allegro @bakb @lshell @gailfaith @dbwhitted @ann64 and @tallygirl have experience with diverticulitis and may be able to offer support from their experiences.

Back to you @happyat76 How long have you had this pain? Did you do anything different with your diet, besides having nuts, before the pain started?

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hello Ethan,
Thanks for your remarks about my condition. I really don’t feel that Diverticuloses is causing my pain. I appreciate the fact that you may think so. I was told this the last time I had a colonoscopy which was January of 2016. I was told then to always chew nuts very very well. I usually don’t have a problem earting 10 almonds daily. It is just that I have had so many cat scans, endoscopy’s etc. and have been on so many different pain meds. p.p.i’s and nothing, absolutely nothing takes this pain away. I just thought the other day, “I wonder if it could be Diverticuloses that causes this pain”. No one here has said that they get the same pain as I do. My bowels are working fine, no problem with that. This pain goes away for a week or so,then comes back with a vengeance and lasts for 2-3 days and then goes away. It has been going on for a couple of years now. The last cat scan was last year and the Dr. said she saw that my esophagus was a bit red and that I should be on a P.P.I. which I am. I take Lansaprazole? every morning, but I dont believe it is doing anything as I still get the pain.This Dr. was not a G.I. Dr. I am going to see my family Dr in 2 weeks and I am going to insist she send me to a Gastroenterologist this time. It is not my heart as I have been going to a Cardiologist and had a nuclear stress test done and it was ok. My blood pressure is usually around 156/73 and this Dr. is concerned about the fact that it stays high even when I sleep. He is sending me to a sleep specialist for a sleep study as he believes I have sleep apnea. He said that the pain I get is not from my heart. I will be 78 this July and am so fed up with how my life goes the days I have this pain. It is hard for me to breathe. I do have a tumour in the head of my pancreas and have been seen by a cancer Dr. about it. She told me that since it hasn’t changed in 11 years, to not worry about it, but to keep having cat scans yearly to make sure to stays the same. If you or anyone else has any ideas about my pain, please, please let me know. Thanks so much. Oh yes, I had my gall bladder removed years ago and my bile ducts are clear, no stones.

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@hopeful33250

Hello @happyat76

I am glad that Ethan invited me to your discussion. Yes, I'm very familiar with diverticulitis and have had lots of experience with bouts of it. Diet and avoiding constipation are the most important factors. Also, exercise and drinking lots of liquids which helps minimize the constipation problem which leads to the diverticulitis. There are good products such as stool softeners that can be used as well. I would also like to invite @thull as she has also had diverticulitis.

I noticed that you have a NET in your pancreas. I have had three surgeries for NETs and I'd like to invite you to the Connect discussion on NETs. Here is the link, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?tab=discussions. If you are open to sharing more, how was your NET diagnosed? Do you have diabetes as a result of the NET in your pancreas?

I hope that you are able to share more. I look forward to hearing from you again. Those of us with NETs are a rare breed and we thrive on information from others who have it.

Jump to this post

to Teresa
Thanks so:much for your reply. Teresa, please read my reply to Ethan. I believe that all of your questions to me are answered there. Any input you have for me is greatly appreciated.

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