Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@johnbishop

Welcome @gthalbrooks, Statins have a known side effect of causing neuropathy. If if were me, I would definitely discuss your question about the study with your doctor or the folks running the study. I have refused statins myself for lowering cholesterol for that specific reason - I don't want to make my neuropathy any worse. There are conditions requiring statins where I may feel different for myself based on the risks but I would discuss it with my care team. Here's another discussion on the topic you may want to read through.

Statins cause peripheral neuropathy?: https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Have you talked with your doctor about your increased neuropathy symptoms and the study?

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Yes Red Rice yeast from Nature’s Sunshine works well.

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@johnbishop

@anya40, Statins didn't cause my neuropathy but I've avoided taking them because I don't want it to get worse. Basically I just started exercising more, eating healthier and worked at losing some weight to help lower my cholesterol numbers. Mayo Clinic has some tips that might help - Top 5 lifestyle changes to improve your cholesterol: https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/reduce-cholesterol/art-20045935

There are also alternatives to statins for lowering cholesterol that you could discuss with your doctor - https://www.healthline.com/health/high-cholesterol/alternatives-statins

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Statins did begin my neuropathy. Chemotherapy than kicked it up considerably. I guess I can complain too much since I’m still alive, but this stuff can certainly get old.

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@anya40

I've beenfon a st\\\\\\\\\\\\\\\\\\\\\\\\\

I've been on a statin drug for several years and had no idea it caused neuropathy. I didn't know what neuropathy was until I was diagnosed several months ago. It started with a feeling similar to restless leg syndrome at night and has progressed to a burning feeling in both legs from my knees to my ankles. Because I only get intermittent sleep at night, I'm so completely exhausted during the day I can barely do anything and end up sitting in my recliner most of the day. My question to anyone out there who has stopped using statins is: - Once you stop does your neuropathy get better and to what degree? Also, how do you then treat your cholesterol? I would really appreciate any insite you could give me.

Jump to this post

@anya40, Statins didn't cause my neuropathy but I've avoided taking them because I don't want it to get worse. Basically I just started exercising more, eating healthier and worked at losing some weight to help lower my cholesterol numbers. Mayo Clinic has some tips that might help - Top 5 lifestyle changes to improve your cholesterol: https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/reduce-cholesterol/art-20045935

There are also alternatives to statins for lowering cholesterol that you could discuss with your doctor - https://www.healthline.com/health/high-cholesterol/alternatives-statins

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@johnbishop

Welcome @gthalbrooks, Statins have a known side effect of causing neuropathy. If if were me, I would definitely discuss your question about the study with your doctor or the folks running the study. I have refused statins myself for lowering cholesterol for that specific reason - I don't want to make my neuropathy any worse. There are conditions requiring statins where I may feel different for myself based on the risks but I would discuss it with my care team. Here's another discussion on the topic you may want to read through.

Statins cause peripheral neuropathy?: https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Have you talked with your doctor about your increased neuropathy symptoms and the study?

Jump to this post

I've beenfon a st\\\\\\\\\\\\\\\\\\\\\\\\\

I've been on a statin drug for several years and had no idea it caused neuropathy. I didn't know what neuropathy was until I was diagnosed several months ago. It started with a feeling similar to restless leg syndrome at night and has progressed to a burning feeling in both legs from my knees to my ankles. Because I only get intermittent sleep at night, I'm so completely exhausted during the day I can barely do anything and end up sitting in my recliner most of the day. My question to anyone out there who has stopped using statins is: - Once you stop does your neuropathy get better and to what degree? Also, how do you then treat your cholesterol? I would really appreciate any insite you could give me.

REPLY
@johnbishop

Welcome @gthalbrooks, Statins have a known side effect of causing neuropathy. If if were me, I would definitely discuss your question about the study with your doctor or the folks running the study. I have refused statins myself for lowering cholesterol for that specific reason - I don't want to make my neuropathy any worse. There are conditions requiring statins where I may feel different for myself based on the risks but I would discuss it with my care team. Here's another discussion on the topic you may want to read through.

Statins cause peripheral neuropathy?: https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Have you talked with your doctor about your increased neuropathy symptoms and the study?

Jump to this post

No, and I don’t have another appointment until July. I’ll talk with her then.

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@gthalbrooks

I am in a study testing whether taking a statin can help prevent dementia. Each day I take atorvastatin or a placebo. During the time I have been in the study my neuropathy seems to have gotten worse. Could the study pill have caused this decline? Should I stop participating in the study?

Jump to this post

Welcome @gthalbrooks, Statins have a known side effect of causing neuropathy. If if were me, I would definitely discuss your question about the study with your doctor or the folks running the study. I have refused statins myself for lowering cholesterol for that specific reason - I don't want to make my neuropathy any worse. There are conditions requiring statins where I may feel different for myself based on the risks but I would discuss it with my care team. Here's another discussion on the topic you may want to read through.

Statins cause peripheral neuropathy?: https://connect.mayoclinic.org/discussion/statins-cause-peripheral-neuropathy/

Have you talked with your doctor about your increased neuropathy symptoms and the study?

REPLY

I am in a study testing whether taking a statin can help prevent dementia. Each day I take atorvastatin or a placebo. During the time I have been in the study my neuropathy seems to have gotten worse. Could the study pill have caused this decline? Should I stop participating in the study?

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I discontinued it several years ago due to muscle issues. My cholesterol has remained steady with no problems since. I tried Crestor and it did not help.

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@kbirchem

It can take you from being a pre diabetic to diabetic . It raise your blood sugars .

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I need to stop taking this stuff I'm going to probably take a once or twice a week you're exceptionally correct it went from my lack of 6.1 - 7.0 in a little over two years that's how long I've been taking rosuvastatin is gone up I'm feeling of tingling and numbness in the legs

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@gator123

Omg I am tingling in my toes and that and I take the same medicine

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It can take you from being a pre diabetic to diabetic . It raise your blood sugars .

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