Statin discontinued due to neuropathy. What are some alternatives?

Thanks! Will try it.

MaryMaurer, you may think I am crazy, but I too take Lipitor in the, 40mg strength for 40 years.
When my toes started burning and tingling, I was very uncomfortable. I kept complaining and someone suggestion I take CBD pills. I decided I would try CBD cream above, 500 mg strength. To my amazement it took about 3 days but my tingling and burning lessened. I have been using CBD lot/ion over 900 mg for 3? Years now, and some days no neuropathy and ot’her days a little. It’s worth a try as everyone I have told about say it has,helped them.

I had no side effects. My allergy to statins prevented me from taking them. Repatha has been a very welcome substitute.

Forgot to add 75mg of Lyrica.

I will jump into this conversation. My doc put me on 40mg of Lipitor 40 years ago, as my mother and older sister both had heart attacks in their 60's as well as quad-bypass. I am 82 and started experiencing tingling in my toes, then feet and now lower legs. As it was hard to walk much less do much with all this tingling, I decided to try CBD cream of a supposed strength of al lease 500mg (the FDA does not regulate the mg strength but try a strength that may help) I have been using CBD cream on my toes, feet and lower legs every morning and in the evening if I go out for the evening. Some days, I have total no neuropathy and others a bit of burning but no tingling. My Cholesterol numbers runs under 141. I think I will stop Lipitor for a week or so and see if my neuropathy lessens.I also have fibromyalgia on my upper body and I take 75mg every 12 hours. Hope what I have written helps someone else.

Statin neuromyopathy usually disappears with stopping the offending statin. You can switch from a fat soluble statin [ all the common ones, Lipitor, Crestor, Simvastatin are fat solubel.]. There are water soluble statins like fluvistatin I think thats the name more expensive so you ask for a formulary exception. Zetia is often helpful and there are new non statin anti cholesterol meds that work with Zetia

My neurologist switched me to Livalo a different statin with less side effects regarding PN.

Good to know. I've heard good & bad about Repatha, as all drugs have side effects & are different from person to person. My doc prescribed Repatha, but my insurance would not pay for it unless I tried a similar drug (Praluent) first. It is also a two week injection, so whatever side effects happen, you're stuck with it. My fear with both drugs was that it would exacerbate my neuropathic pain. Does your wife have neuropathy? Thanks.

Interesting, been on Atorvistatin 40 mg for 6 months, and have severe diabitic neuropathy, about 3 years now. Never heard of any connection between statins and neuropathy however.

My statin and Repatha to neuropathy story.

Hope it is useful.

Last August feeling good

Annual physical good

Wellness scan CT prescribed- my first
High calcium-concern for stroke and heart attack

Pravastatin prescribed-even though cholesterol ok

Took stress test - good
Doc changed blood pressure med from Licinopril to Nebivolol

Month later I’m in an emergency room with numbness and tingling in feet and legs and extreme fatigue.
ER doc told me to stop Nebivolol

I did, fatigue stopped
But neuropathy symptoms continue- grew -

Finally diagnosed with PN

Because of reading on web that statins can cause PN - worked with doc to stop it - and did for 3 months

PN symptoms better but still exist.

Doc then prescribed Repatha
Took first shot - 4 days later PN symptoms grew
Stopped Repatha shots

Now working with a doc to determine a non toxic way to help prevent stroke and heart attack

Back in November, advise to help overcome PN to be on a strict-Vegan-GF-No alcohol diet and have exercise daily
Lost 20 pounds - one good

Hope to overcome the PN shock from Repatha

Thank you all - again

Also -patients and physicians are describing that our health care system needs help.
Help to return to collaborative communication approach- not isolated and divided