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Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

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greeneagle | @greeneagle | May 14, 2023
In reply to @elizabethaames "I've been taking Crestor/Rosuvastatin only since Oct '22 for a genetic high (330+) cholesterol risk despite..." + (show)
Profile picture for elizabethaames @elizabethaames

I've been taking Crestor/Rosuvastatin only since Oct '22 for a genetic high (330+) cholesterol risk despite active/regular exercise/lean dietary intake etc and it helped the cholesterol but has negatively impacted my mobility and lifestyle substantially...with pain, twitching, tingling, cramping, electrical type zaps in extremities etc. The prescribing doc just said, "discontinue and see" without providing an alternative (gee thanks) so I feel like a sitting duck...should I discontinue it and risk stroke or continue to put this horrid stuff in my body that's causing me to be a fall risk? Worried about permanent nerve damage and feeling like my foot's asleep constantly too...(driving hazard) Thoughts?

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I have a syndrome called Fibromyalgia that cause muscle cramps pain as well as feelings of pin pricks anywhere on my skins and feeling of electrical impulses. I was first started on Elavil generic name-amitriptyline , then neurotin and now 75mg of Lyrica twice a day. I met some friends that told me they experienced the same but they were on 300 mg twice a day. Again,
we are all different on how we tolerate pain. I use CBD cream of at least 900 mg strength and above. No specific brand, just buy any CBD product and see if I get relief. Volteran helps as well and it is less expensive than CBD on an ounce price. I know what I have and I know what helps me. Hope it may help you and anyone else that reads what I have written.

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greeneagle | @greeneagle | May 14, 2023
In reply to @steveny9 "Really 40 years on Lipitor? What age did you start and why?" + (show)
Profile picture for SteveSH @steveny9

Really 40 years on Lipitor? What age did you start and why?

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I started on 40 mg of lipitor when I was 43 and my new doctor listed to the history of heart disease in my mother and older sister. My mother had a heart attack at 62 and again at 64 and had a quadruple bypass heart operation. My doctor knew that Lipitor was a drug to lower cholesterol and he asked me to try 40 mg to see if I could avoid having heart disease. I have no heart diseased that I am aware and I will be 83 in August 2023. I thought I noticed pain from Lipitor when I was in my late 60's and I stopped for a month, but decided Lipitor was not my situation. I further asked my doctor, and he replied that "we all" as we age experience different feelings as we get older. Why he says, all the time "growing old ain't for sissies". The human body as it grows older your mind could be the culprit!

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marymaurer | @marymaurer | May 14, 2023
In reply to @dlmdinia "Red yeast rice has the same active ingredient as statins. Many people take citrus bergamot instead." + (show)
Profile picture for dlmdinia @dlmdinia

Red yeast rice has the same active ingredient as statins. Many people take citrus bergamot instead.

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I know… but different statins can apparently affect people differently.
Have people achieved much success in lowering LDL with citrus bergamot alone?

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dlmdinia | @dlmdinia | May 14, 2023
In reply to @marymaurer "thanks. Really appreciate your input. I stopped statins about 3 years ago and now take red..." + (show)
Profile picture for marymaurer @marymaurer

thanks. Really appreciate your input. I stopped statins about 3 years ago and now take red yeast rice. It works.. but like with the cbd you have to research to find which brands actually .There’s wide variation in the effectiveness.

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Red yeast rice has the same active ingredient as statins.

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dlmdinia | @dlmdinia | May 14, 2023
In reply to @marymaurer "Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under..." + (show)
Profile picture for marymaurer @marymaurer

Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under the toes feeling. Weird. Not painful but numb. Dc’d statin about 3 years ago and now take red yeast rice. Perhaps a little better.. not worse. Thank goodness. Statins are only cause I can think of. No other meds or physical problems.

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Red yeast rice has the same active ingredient as statins. Many people take citrus bergamot instead.

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SteveSH | @steveny9 | May 14, 2023
In reply to @marymaurer "Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under..." + (show)
Profile picture for marymaurer @marymaurer

Took statins at highest dose for over 20 years. Neuropathy developed slowly beginning with socks under the toes feeling. Weird. Not painful but numb. Dc’d statin about 3 years ago and now take red yeast rice. Perhaps a little better.. not worse. Thank goodness. Statins are only cause I can think of. No other meds or physical problems.

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what is a high dose and what brand?

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SteveSH | @steveny9 | May 14, 2023
In reply to @greeneagle "I do not have numb, only tingling and a bit of burning. I have been on..." + (show)
Profile picture for greeneagle @greeneagle

I do not have numb, only tingling and a bit of burning.
I have been on CBD for 3 years and 40mg of Lipitor for 40 years.
As I type this I can feel a bit of burning all over my body. But this feeling also could be fibromyalgia.

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Really 40 years on Lipitor? What age did you start and why?

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mecha | @mecha | May 13, 2023
In reply to @greeneagle "What I am trying CBD cream I am buying from a store in Santa Fe, NM..." + (show)
Profile picture for greeneagle @greeneagle

What I am trying CBD cream I am buying from a store in Santa Fe, NM
that glad to sell the product. No brand just a man that formulates in his home. As CBD is not regulated by the FDA, none of us know for sure what the label states- if true or not.
I would only suggest asking the person behind the counter of wherever you go to purchase- asking g him or her what product is the "best seller" and try it.

I also tried Australian Dream and Volteran. Any cream sold for pain is worth chancing that it may reduce symptoms.
I am 83 and have been on 40mg of Lipitor since I was 40. I have never had neuropathy until 3 years ago. I also have fibromyalgia and I take 75 mg of Lyrica twice a day. I previously tried Neurontan but it did not help with my muscle pains.
Unfortunately, we as we get older get symptoms of many afflictions. My doctor is my best friend and he has as well many problems. He favorite expression "growing old isn't for sissies"- is so true. I am not trying to belittle problems we all have. I just try things that other friends have told me to try.

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Tengo neuropatía perisferica y las gotas de CBD me han sido útiles para la espasticidad,mejor que thc.
El laboratorio Elea ( en algunos países)las ofrece, lo que da más seguridad por que se sabe fehacientemente la cantidad del principio activo que contienen.De lo contrario es al azar.

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greeneagle | @greeneagle | May 13, 2023

I do not have numb, only tingling and a bit of burning.
I have been on CBD for 3 years and 40mg of Lipitor for 40 years.
As I type this I can feel a bit of burning all over my body. But this feeling also could be fibromyalgia.

REPLY
1 reply
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Marilyn McFarland | @1942marilyne | May 13, 2023
In reply to @greeneagle "What I am trying CBD cream I am buying from a store in Santa Fe, NM..." + (show)
Profile picture for greeneagle @greeneagle

What I am trying CBD cream I am buying from a store in Santa Fe, NM
that glad to sell the product. No brand just a man that formulates in his home. As CBD is not regulated by the FDA, none of us know for sure what the label states- if true or not.
I would only suggest asking the person behind the counter of wherever you go to purchase- asking g him or her what product is the "best seller" and try it.

I also tried Australian Dream and Volteran. Any cream sold for pain is worth chancing that it may reduce symptoms.
I am 83 and have been on 40mg of Lipitor since I was 40. I have never had neuropathy until 3 years ago. I also have fibromyalgia and I take 75 mg of Lyrica twice a day. I previously tried Neurontan but it did not help with my muscle pains.
Unfortunately, we as we get older get symptoms of many afflictions. My doctor is my best friend and he has as well many problems. He favorite expression "growing old isn't for sissies"- is so true. I am not trying to belittle problems we all have. I just try things that other friends have told me to try.

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I am trying lavender oil now. A friend suggested. I really have not found anything else. On prednisone 6 mg now 3 years. Have just had a c r p test. I see no getting better or worse.

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