Disappointing update on Tymlos

Posted by anewyorker @anewyorker, Feb 17 12:18pm

Hi to all,
I'm following up on a post I did long ago about my good results on Tymlos after one year, when the scan showed that the hip T score was unchanged at -2.1 T score, but spine, the area of greatest concern, went from -3.3 to 02.6, barely osteoporotic. The femoral neck improved slightly, and the wrist measure actually worsened, from -3.0 to -3.8.

Well, now I'm at two years and am going off Tymlos. I had a DEXA scan this morning and got the results very quickly. And I'm pretty upset. Spine worsened to -2.8, hip worsened slightly to -2.1, wrist improved from last year but last year's score was much worse than before I started Tymlos, and femoral neck, after improving last year, worsened significantly and is now worse than when I started Tymlos.

In short, the only thing that's at all improved over these two years is the spine, and the improvement is small -- from -3.3 to -2.8. The other sites are in worse shape than when I started.

I have not missed giving myself the injection for even one day over these two years. So I'm pretty bummed. I hope all of you who are on Tymlos have better results than I did!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for gowalking @gowalking

Hello.....Just reading these comments and wondering if you took your shot within 24 hours of blood work, Dexa Scan or even mammogram? My doctor always says to skip that dose because it can affect the results of these tests.

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@gowalking I've never heard of a Tymlos shot affecting the DEXA results. They do tell you to not take calcium supplements for 24 hours prior to the test.

For bloodwork, I always took my Tymlos shot afterwards. I prefer to take all blood tests first thing in the morning; no food, no medications.

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