Disappointing update on Tymlos
Hi to all,
I'm following up on a post I did long ago about my good results on Tymlos after one year, when the scan showed that the hip T score was unchanged at -2.1 T score, but spine, the area of greatest concern, went from -3.3 to 02.6, barely osteoporotic. The femoral neck improved slightly, and the wrist measure actually worsened, from -3.0 to -3.8.
Well, now I'm at two years and am going off Tymlos. I had a DEXA scan this morning and got the results very quickly. And I'm pretty upset. Spine worsened to -2.8, hip worsened slightly to -2.1, wrist improved from last year but last year's score was much worse than before I started Tymlos, and femoral neck, after improving last year, worsened significantly and is now worse than when I started Tymlos.
In short, the only thing that's at all improved over these two years is the spine, and the improvement is small -- from -3.3 to -2.8. The other sites are in worse shape than when I started.
I have not missed giving myself the injection for even one day over these two years. So I'm pretty bummed. I hope all of you who are on Tymlos have better results than I did!
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@gowalking I've never heard of a Tymlos shot affecting the DEXA results. They do tell you to not take calcium supplements for 24 hours prior to the test.
For bloodwork, I always took my Tymlos shot afterwards. I prefer to take all blood tests first thing in the morning; no food, no medications.