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Differentiated Liposarcoma: What treatments have you had?
A few weeks ago I was diagnosed with Differentiated Liposarcoma which seems to be a very rare cancer, I am having a hard time researching for related information. The MAYO team have been great to do the needed tests. The Mass has grown and attached to the colin and bladder and surrounded the main blood vessel that sends blood the the leg and foot so surgery is not an option. I am also told chemo is not option in my case so we will be looking at radiation.
If there is anyone out there that has this Liposarcoma cancer I would appreciate hearing from you and learning about your life with this cancer. Are their other alternative treatments that anyone is aware of?
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Please help! My 57 years old dad has a very agressive dedifferentiated liposarcoma metastasized to the lungs. It covers one fourth of his back (lower right side), coming out about 8 inches, and it’s growing very rapidly everyday. It has now reached the spine eating into a vertebrae, and it is growing in all directions, he is starting to loose function in his right leg… He lives in Quebec, Canada, and doctors told him there is nothing they can do but to keep him on morphine for pain management. Dad is too young to die, is there anything that can be done?
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1 Reaction@amelieonsoti, I'm so sorry to hear about your dad. Here is a clinical trial at Mayo Clinic that you might look into:
- Treatment of Metastatic Soft Tissue Sarcoma (STS) Patients (FIBROSARC USA) https://www.mayo.edu/research/clinical-trials/cls-20436934
To speak with a clinical trial study coordinator at Mayo Clinic
International patient clinical studies questions
Phone: 507-284-8884
Email: intl.mcr@mayo.edu
@sids, you are in good hands at Mayo Clinic. Did you do radiation treatment? What type? How are you doing?
I am 83 and the person above. I completed five weeks of radiation at MAYO and go back in three months for new CT scans to see if the radiation was successful in stopping the growth. MAYO has been great and would recommend you contact them. Dedifferentiated Liposarcoma is very rare and you are the first one in a year that has the same one, although in a different area of the body. I also have contacted a Naturopathic doctor that is trying to help me build up my immune system so the body will be able to attack and destroy the cancer. Mine is already stage 4 because it has spread so much, but we are working on it.