Connect← Return to Differentiated Liposarcoma: What treatments have you had?
Discussion
Differentiated Liposarcoma: What treatments have you had?
Sarcoma | Last Active: Feb 3 5:05pm | Replies (13)Comment receiving replies
Please help! My 57 years old dad has a very agressive dedifferentiated liposarcoma metastasized to the lungs. It covers one fourth of his back (lower right side), coming out about 8 inches, and it’s growing very rapidly everyday. It has now reached the spine eating into a vertebrae, and it is growing in all directions, he is starting to loose function in his right leg… He lives in Quebec, Canada, and doctors told him there is nothing they can do but to keep him on morphine for pain management. Dad is too young to die, is there anything that can be done?
Replies to "Please help! My 57 years old dad has a very agressive dedifferentiated liposarcoma metastasized to the..."
I am 83 and the person above. I completed five weeks of radiation at MAYO and go back in three months for new CT scans to see if the radiation was successful in stopping the growth. MAYO has been great and would recommend you contact them. Dedifferentiated Liposarcoma is very rare and you are the first one in a year that has the same one, although in a different area of the body. I also have contacted a Naturopathic doctor that is trying to help me build up my immune system so the body will be able to attack and destroy the cancer. Mine is already stage 4 because it has spread so much, but we are working on it.
Here is a picture of my dad’s dedifferentiated liposarcoma
Connect
@amelieonsoti, I'm so sorry to hear about your dad. Here is a clinical trial at Mayo Clinic that you might look into:
- Treatment of Metastatic Soft Tissue Sarcoma (STS) Patients (FIBROSARC USA) https://www.mayo.edu/research/clinical-trials/cls-20436934
To speak with a clinical trial study coordinator at Mayo Clinic
International patient clinical studies questions
Phone: 507-284-8884
Email: intl.mcr@mayo.edu