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Diagnosis of Lingual Raynauds Phenomenon
After multiple tests (Blood/MRI/CT) with no conclusive results (no blood markers, no vascular anomalies, no autoimmune issues) ENT has diagnosed my wife with Lingual Raynauds. She has a randomly recurring blue tongue event, usually late at night or when first waking up. No pain or numbness, digits/lips not impacted. Once she is up tongue returns to normal. Wondering if anyone else has received this diagnosis? ENT recommends calcium channel blockers. Thank you.
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Fascinating, @wilmachado. Random blue tongue with no pain…..I imagine you and your wife have been on an interesting journey to find this out. I did a search from the home page and found @artie68 has commented about a similar situation and may have more information to share.
Myself, I saw a determotologist and vascular surgeon who indicated I had Raynaud’s affecting my hands and feet. My cardiologist at the time did not agree. I have learned through my own research there can be an array of specialists that can be involved. With that, I did a quick search (I am absolutely no medically trained person) I found a couple articles you may find interesting if you have not yet seen them.
- I particularly want to point out a possibility for your wife, “comprehensive diagnostic process, including rheumatological and cardiological evaluations, to rule out connective tissue diseases and cardiac dysfunction.” https://pubmed.ncbi.nlm.nih.gov/39310508/
- Another patient received a provisional diagnosis of stroke then eventually found answers with rheumatology after treatment didn’t help. https://casereports.bmj.com/content/15/11/e251988
Do you know if the Raynauds is considered primary or secondary? Does your wife plan to pursue confirmation from other specialists before starting calcium channel blockers?