Diagnosing SFN

Posted by jager5210 @jager5210, Apr 19, 2019

I found a cartoon illustration of the diagnostic steps a doctor, who I think was from U. of Wisconsin on this site, uses to diagnose PN but I lost it. Can anyone point me to it again?

Hi @jager5210 — I think I've posted it in several places but here is a link to the video.

This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.

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Hi John,

Sorry for the abrupt ending of my previous reply but I accidentally hit send before running to answer the door.

So my question after all that is; are there really 'Death Panels'? As a white, male over 70, do I meet the criteria for denial of service? Because if I view the clip you sent me correctly, there are a lot of avenues that my neurologists have not explored over 3.5 years. I doubt that my Duke/Harvard educated neurologist would be unaware of the diagnostic protocol for sorting out SFN since you can google it but he does work for Wellstar, a big HMO. My Ukrainian doctor may be unschooled but she represents a major hospital that advertises as having a multi-disciplinary team yet she failed to refer and, in fact, explicitly told me there was nothing else that could be done.

Am I reading too much into this or do you or someone else have some alternative theories. I have to admit, after the expense, time and pain of a lingering disease, I have a someone myopic view on this matter.

Thanks in advance for your time.

Barry

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Hi Barry @jager5210 — I can understand why you might feel the way you do. It is a challenge and it's a good reason why I think each of us has to learn as much as we can about our health conditions and become our best advocate. It's certainly not an easy road but I would keep pushing for answers and trying to find something that helps.

Are you following any kind of treatments now? I know that elevated B6 numbers can cause neuropathy but I think you mentioned earlier you stopped taking the B complex stuff. I have no medical knowledge other than what I read but B6 is different than the other B vitamins as it's not water soluble and the body doesn't get rid of it easily like the other ones so you can get B6 toxicity which can cause neuropathy.

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Thanks John. Yes, I stopped as soon as I found out but the pain is getting worse. It's certainly surprisingly hard to find help and compassion is in even shorter supply.

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