Diagnosed with sarcoma? Let's share

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

@verena

I, too chose radiation first for my Myxofibrosarcoma stage 2b in my thigh, then surgery after 4 weeks of recovery, mostly for my skin but I also had fatigue, from radiation. My surgery was this March with clear margins. Looks like you have a treatment plan, that is the most important first step. Best of luck to you.

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Thank you you’re the first person that I’ve heard that has something similar and I loved the positive note. Thank you for your encouraging words ❤️‍🩹🙏

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Assalamualaikum to all who reading this comment I want to share my store
Iam Amreen from India hyderabad
I was diagnose with phyllode tumor
My age is 28
Since last year I was suffering from phyllode tumor of breast
In India hyderabad one of the hospital which name was mnj cancer intuition in this hospital my surgery was done the doctors removed my complete breast.

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