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Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

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hjemma | @hjemma | 1 day ago
In reply to @carolak "@hjemma Hi I've had MRI and ultrasound. I went to a regular surgeon and an orthopedic..." + (show)
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@hjemma
Hi I've had MRI and ultrasound. I went to a regular surgeon and an orthopedic surgeon each said they did not want to touch it and sent me to Moffit cancer center in Tampa. That Dr looked at pics and told me a soft tissue sarcoma and to have surgery. Said it was probably on a nerve and that causing pain. Said it would not go away He is Also the dr who said probably not cancer because it hurts. Did not offer to do a biopsy .. and sadly I didn't think or ask about a biopsy. He did say they would test it . That's as far as I've gotten Thank you for response.. and no chest or other X-rays or scans on body

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@carolak
Prayers for you. I guess it was my Family Med doc who ordered the US w/biopsy because I asked. I don't know if Ortho or Oncology would have started there or not. Maybe yours is small enough and away from other structures that you don't need to shrink it first. Keep asking the questions, like, how often do you see this?

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