Diagnosed with sarcoma? Let's share

Hello Jeff. This is a long time to wait until May but your body may need to heal too.
I have a different kind of cancer but an aggressive one by nature. I got surgery on october 28 and they removed all they could find., too. Ct scan done, no apparent metastasis, 1 lymph node positive out of 32 removed.
So no local radiations
But i was started on adjuvant chemotherapy this week. They even wanted to start 2 weeks ago.
I dont know where you are treated but maybe getting a second opinion would help?
I originally had an initial consultation with an oncologist on 11/4. I contacted Mayo on an impulse because it was a month away at the time. On october 27, i had a series of tests scheduled at Mayo and on october 28, surgery needed was done at Mayo too. Since then, i have felt very well taken care of and never let down.
In my case the second opinion helped a lot. But everyone is different 🙂
I wish you good luck in your journey.

Hi Mary 64300. Thank you for sharing your story. I heard other cancers, most people resumed to their normal life activities after surgery and treatments. Mine, it was and still a roller coaster since 2020. After chemo and radiation, the tumor is still active and jumped around. I'm doing my best fighting it but sometimes it's just too much that I just wanted to give up. But our life is in God hand. Until then, we have to fight and fight to our last breathe. I wish you lots of strength to go through this rough journey and regain your health. 🧡

Hello mp01. I have a different kind of cancer. But it is also very rare in older adults. I have found very little information and doctors at Mayo partner between specialties to provide the best treatment. In my case, both gynecology and neurology oncologists decided on the care. The fact that children and adults dont always respond the same way to treatments is a wild card. But i was ordered extra tests on the tumor removed through Tempus, to better understand it since it is poorly differentiated. This may help tune up the treatment. I am not sure what the criteria is for those extra tests.
Hang n there. I went through my first cycle of chemo. Very tired but positive. I know it is a long road so i started practicing my walking 😊

Hi,

I just had a left pneumonectomy on Nov 30. Upon further examination they tell me my tumor was undifferentiated sarcomatoid carcnoma. It was also found in 5/19 lymph nodes. They took out all the cancer they could find along with the lung . No metastasis . Next step is a scan in may. Should i do anything in the mean time?

Jeff

Surgery 2021.
Then chemo and radiation.
The broken tibia,
2022, Dec radiation and chemo for spots on lungs
Now waiting fór second opinion.

No worries. I wouldn't want anyone to have what have.

Sadly no

Hello @whpsurvivor2022

Several months ago you posted about a lump that was found on your femur. I was wondering how you are doing. Did the MRI determine the cause?

Of course. And yep, I live in India. West Bengal to be precise. And thank you for sharing, we hope you are fine now. May I ask you when did you start its treatment and how are you now? Has it re-occurred?

Hello. I'm 60 years old and was diagnosed with rhadomyosarcoma two years ago. I'm still under treatment as the tumor has jumped from one place to another. Is there anyone out there has the same diagnose as mine? I was told this is a very rare disease in older age because it's mostly only children.