Diagnosed with sarcoma? Let's share

I am sorry and wish you the best. My synovial sarcoma has not returned, yet. But I am always waiting. I go for CAT scan every six months. I will be 82 in June. So I hope for the best and keep smiling. What else can we do?

I was diagnosed with the stomach cancer in 2019. I feel good, but have no appetite.

I see. Sorry for the misunderstanding. My doctor is very receptive to questions. Is yours?

Although English is not my first language, I was actually referring to the lots of new medical terms I suddenly had to navigate. It felt like I was entering a foreign country. Thanks for helping others find a way.

I’m so glad everything went well. My experience with them has been very positive. I don’t share your language challenges, but worked there years ago, & used the translators with many patients. My thoughts are with you.❤️

Just to let you know I had surgery on Monday at St Luke’s and everyone there has been wonderful!

I found a tumor in my left groin in 2009. I asked my physician if he thought maybe my hernia had returned? He said, he did not believe so, and for me to watch it and if it ever hurt or got larger to let him know.
In February of 2010, it had gotten a bit larger but no pain. I was ordered to have a CT scan which showed a bad gallbladder and a shadow that the radiologist was not sure what I had. Two days later had my gallbladder removed and exploratory surgery on the shadowy area. It was discovered I had Liposarcoma. Hospital radiologist said, no cancer but my physician sent my tumor to Mayo Clinic. Results can back, some cancer cells. in 2011, I had another tumor in my left groin area. This time, I went to MD Anderson in Houston to have a 2nd tumor removed. I asked my surgeon if it had any cancer. I was told, "my stars"were aligned as there was not any cancer. In 2017, while playing golf, I felt another tumor in my left groin. It was removed in February of 2019. I was told I should not still be getting more tumors. In 2022, another tumor was spotted by a CT scan. I asked MD Anderson, what do men of 82 do- have the tumor out or wait until later. For some reason, If I do not remove a tumor, I do not get a new tumor; only if is removed. My first tumor removed in 2010 was second stage. I will be 84 this summer and wait to see if the tumor grows large enough to be painful. I return to MD Anderson every October for a CT scan to see how much the tumor grows. Last year it grew the width of a human hair. It is the most common type and very slow growing.

So glad they were able to remove it. Hope the good news continues!

I had a synovial sarcoma, rare cancer. Operated in 2019 and was in the hospital for two weeks. Long recovery, but I feel good. Have great difficulty eating or wanting to eat. No chemo or radiation required. However, this cancer does return. So far I'm good. But always waiting for bad news. Have CATscans every six months, see my oncologist every six months also. I am on no medication for cancer, just my regular stomach meds.

Hope all will be well.

Thank you for sharing. It seems that just talking to friends is so repetitive with no answers. Wishing you the best outcome with least suffering.

I was also diagnosed with leiomyosarcoma last year ans started chemo in August. It seems like everyone's situation is different and therefore treated different. I am 72 and was feeling great until my clavicle broke due to a tumor in the bone. Makes me stage 4. Seems like uterine is more common but I have no uterus so they have no idea where it started. Chemo caused shrinkage at first, then no growth which I am told is what they are hoping for in my case. Because it's already in the bone in my case there is no cure so I will be on chemo as long as I can take it. My next scan is due this week. Wishing you strength to cope and positive outcomes from treatment. I'm in Wisconsin.