Diagnosed with sarcoma? Let's share

have you had your surgery yet - Mine is scheduled for May 5th - I was told 7 to 10 days in hospital because of the flap - not looking forward to the hospital stay

I have a soft tissue sarcoma in my right calf about the size of a Soft Ball - I have completed 8 of 25 radiation treatments - no adverse affects - I am also in a clinical trial for pre-surgery Physical therapy - I must walk 30 minutes a day plus each week I am given a series of daily exercises - they range from increasing strength, movements, flexibility. An example is to get up from a chair unassisted - this is really strengthening my core. This week the concentration is my hips to give me more movement. This really helps me with a feeling of empowerment that I can have a positive affect on my recovery after surgery - I have to have a thigh flap taken to replace the muscle and tissue from the surgery.
I am using a radiation burn cream 2 to 3 times of day - no sign of any damage to the skin as of yet - some swelling in the leg - currently little pain and no affect on use of the leg

I've completed 4 treatments as of today. My "walk through", simulation was 2 weeks ago, and I started radiation treatments last thursday. No side effects. Treating site with Aquafor. Have 21 more treatments to go followed by 4-6 weeks waiting for surgery.

Thanks for the opportunity to tell my story as early as it is.... I was diagnosed with Leiomyosarcoma last month after a detailed biopsy came in from the Mayo clinic. My provider in Denver requested further analysis from Mayo. The result was LMS that is 7.5cm X 5cm X 7.2 cm in the pelvis area. The iliopsoas muscles are involved. My suggested treatment (from a radiation oncologist and confirmed with my surgeon) includes 25 sessions over 5 weeks of radiation first, followed by surgery, and potentially more radiation. The hope is to shrink the mass enough to get a margin that the surgeon wants. I'm hoping the mass reduction will relieve my little pain and larger numbness in my left leg. I've fallen several times since Jan. 1, resulting in a cane use followed by a 4-wheel walker. My weakness in my left leg continues and may require me to be wheelchair bound until I get some relief. I've been examined by these docs along the way the past 6 weeks: PCP, oncologist, radiation oncologist, neurosurgeon, and finally a surgeon (had a hernia repair by him a year ago and I was happy with him). My first treatment is Mar. 6. I'll try to update my progress here.

Hi
Stewart here, 40 yo
Been diagnosed with Synovial Sarcoma of the prostate, which is apparently very rare.
14cm mass in my pelvis and mets to the lungs.
Felt no symptoms until i started having urinary symptoms and then retention. Thats when the mass was found. All up 3 weeks from symptoms to diagnosis.
Best they can offer is palliative radiation and chemo