Diagnosed with sarcoma? Let's share

I'd love to hear from you again post-surgery, @scrowe200. Will this be an in-patient or out-patient hospitalization?

Please post again when you feel up to it.

It will be inpatient and maybe overnight. Longer if the wound healing VAC
Is late arriving only.
The surgeon is an Orthopedic Oncologist
With experience in sarcoma

@scrowe200
So good to hear that you have a surgeon who is experienced in sarcoma. Hoping you have the best possible outcome! Will you be taking the wound VAC home to use on a regular basis?

Yes for 2 weeks then skin graft sewn to wound and VAC back on. I think that is the protocol. I'm taking one day at a time! Thank you for your support!

I have Leiomyosarcoma. I’ve been through 6 treatments of chemo where the cancer shrunk 1 cm with 2 cm remaining. It started as a fibroid in the uterus. After 25 external and 5 internal radiation treatments there’s been NO change. So now back to chemo on 3/22/24. My treatments started July 21/23. 62 year old female, still working through all of this in Arizona.

I was also diagnosed with leiomyosarcoma last year ans started chemo in August. It seems like everyone's situation is different and therefore treated different. I am 72 and was feeling great until my clavicle broke due to a tumor in the bone. Makes me stage 4. Seems like uterine is more common but I have no uterus so they have no idea where it started. Chemo caused shrinkage at first, then no growth which I am told is what they are hoping for in my case. Because it's already in the bone in my case there is no cure so I will be on chemo as long as I can take it. My next scan is due this week. Wishing you strength to cope and positive outcomes from treatment. I'm in Wisconsin.

Thank you for sharing. It seems that just talking to friends is so repetitive with no answers. Wishing you the best outcome with least suffering.

I had a synovial sarcoma, rare cancer. Operated in 2019 and was in the hospital for two weeks. Long recovery, but I feel good. Have great difficulty eating or wanting to eat. No chemo or radiation required. However, this cancer does return. So far I'm good. But always waiting for bad news. Have CATscans every six months, see my oncologist every six months also. I am on no medication for cancer, just my regular stomach meds.

Hope all will be well.

So glad they were able to remove it. Hope the good news continues!

I found a tumor in my left groin in 2009. I asked my physician if he thought maybe my hernia had returned? He said, he did not believe so, and for me to watch it and if it ever hurt or got larger to let him know.
In February of 2010, it had gotten a bit larger but no pain. I was ordered to have a CT scan which showed a bad gallbladder and a shadow that the radiologist was not sure what I had. Two days later had my gallbladder removed and exploratory surgery on the shadowy area. It was discovered I had Liposarcoma. Hospital radiologist said, no cancer but my physician sent my tumor to Mayo Clinic. Results can back, some cancer cells. in 2011, I had another tumor in my left groin area. This time, I went to MD Anderson in Houston to have a 2nd tumor removed. I asked my surgeon if it had any cancer. I was told, "my stars"were aligned as there was not any cancer. In 2017, while playing golf, I felt another tumor in my left groin. It was removed in February of 2019. I was told I should not still be getting more tumors. In 2022, another tumor was spotted by a CT scan. I asked MD Anderson, what do men of 82 do- have the tumor out or wait until later. For some reason, If I do not remove a tumor, I do not get a new tumor; only if is removed. My first tumor removed in 2010 was second stage. I will be 84 this summer and wait to see if the tumor grows large enough to be painful. I return to MD Anderson every October for a CT scan to see how much the tumor grows. Last year it grew the width of a human hair. It is the most common type and very slow growing.