1. < Neuropathy

Diagnosed with moderate/severe poly neuropathy: sensory motor

Posted by windsorchris @windsorchris, Jul 10, 2022

Hi,

Formally diagnosed with polyneuropathy 4 years ago. recent nerve conduction test indicated moderate-severe condition. To date, numb toes, feet, ankles toward knees. It is progressing but still able to do most things including walking, and swimming with modifications i.e. leg floats. I am 74. Would appreciate information, comments and suggestions from those with similar diagnosis. One thing.....HOKA shoes are the best with a Dr. Scholls gel insert; like walking on a cloud and a huge help. I do not mention this condition to friends and just limited report to grown children believing when the time comes and it is obvious that dad has a medical problem i.e. stumbling etc. and I do not want to be pitied which changes the fundamentals of a relationship. Despite some daily difficulties I feel like the luckiest man alive having lived to age 75!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Illa C. Chambers | @illac | Mar 9, 2023
In reply to @mernky "Thank you! I was just diagnosed last year. Just prayer, exercise & Gabapentin so far. GABA..." + (show)
@mernky

Thank you! I was just diagnosed last year. Just prayer, exercise & Gabapentin so far. GABA helps a lot with sensory issues/pain. Twitching, mild weakness, cramping in feet and lower legs more than hands & arms, certainly disrupt my life! Remembering to appreciate the here and now and leaving the rest to my Lord & Savior brings me peace & hope on good and bad days!

Jump to this post

I agree I found myself spiraling down mentally when I was first diagnosed with Progressive Peripheral Neuropathy and Mayo Clinic said there was no cure and they really didn’t know where it came from which left me feeling really hopeless. But God , praying and keeping my mind on the positive. The fact it could be worse and I am still here . Thank you so much for your encouraging words and positivity because you definitely have to find it when you are dealing with an ailment like this.

REPLY
Illa C. Chambers | @illac | Mar 9, 2023

Hi I am so happy that things are normal as they can be I am so proud of you and for you. Unfortunately my story is different I don’t share it with my extended family but my daughter is my full time aid and she works 60 plus hours a week for me because I am so limited due to the Progressive Peripheral Neuropathy. I am numb 24/7 from my waist down, and that has been a total adjustment mentally, physically, and emotionally. At first I couldn’t imagine how I was going to live life like this but with constant prayer and I mean constant prayer God reviled one day at a time , and he would never leave nor forsake me. So I trust him after bringing me through 3 heart attacks and 1 open heart surgery and never left my side I can do this. So I am going to be starting physical therapy virtually but that will help and I am just going to continue tackling these opticals with hopes for the best. I am 56 years of age and I will continue to stay prayerful throughout my journey.

REPLY
1 reply
mernky | @mernky | Mar 10, 2023
In reply to @illac "Hi I am so happy that things are normal as they can be I am so..." + (show)
@illac

Hi I am so happy that things are normal as they can be I am so proud of you and for you. Unfortunately my story is different I don’t share it with my extended family but my daughter is my full time aid and she works 60 plus hours a week for me because I am so limited due to the Progressive Peripheral Neuropathy. I am numb 24/7 from my waist down, and that has been a total adjustment mentally, physically, and emotionally. At first I couldn’t imagine how I was going to live life like this but with constant prayer and I mean constant prayer God reviled one day at a time , and he would never leave nor forsake me. So I trust him after bringing me through 3 heart attacks and 1 open heart surgery and never left my side I can do this. So I am going to be starting physical therapy virtually but that will help and I am just going to continue tackling these opticals with hopes for the best. I am 56 years of age and I will continue to stay prayerful throughout my journey.

Jump to this post

Prayers for healing, my friend. Sorry your N is so severely limiting!

REPLY
1 reply
Illa C. Chambers | @illac | Mar 10, 2023
In reply to @mernky "Prayers for healing, my friend. Sorry your N is so severely limiting!" + (show)
@mernky

Prayers for healing, my friend. Sorry your N is so severely limiting!

Jump to this post

Thank you so much. I truly appreciate it.

REPLY
View MoreView Less
Please sign in or register to post a reply.