Diagnosed with Meningioma

I had this surgery 3 years ago. There wasn't much pain for me.
I had serious complications due to unrelated medical issues so my recovery took longer. That aside the brain surgery wasn't as bad as I thought it would be. Best wishes to you.

Hello @pam1954 and welcome to Mayo Clinic Connect. Hearing a diagnosis of any kind can be jarring and sometimes the information can be overwhelming. It is good you've come to Connect for some support by others with similar experiences to help you wade through this journey!

You will notice that I have moved your post into a discussion called "Diagnosed with Meningioma" that you may find here: https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma/

I'd like to bring in members @fiddlinchuck and @jmb73 to see if they can share their early diagnosis experience with you as you wait for your MRI.

When is your MRI appointment and what you are most worried about?

I had a sinus cat scan that showed i have a meningioma on my left frontal lobe. I will need an mri to confirm. I had no idea. After reading all the info provided by the Mayo website now I'm worried. I lost my sense of smell several years ago and have ringing in my ears which are both symptoms but can also be explained away as aging as the first ENT I visited did. Anyone out there with one of these hard to spell tumors and if so, please share your story.

Glad to have read so much good news and positive outcomes in dealing with meningioma, as I have done. Folks, you might find some helpful info and more inspiration from “meningioma mommas” (meningiomamommas.com). This organization is dedicated to raising awareness about meningiomas and raising funds to contribute to meningioma research. I hope you find it useful, as I have.

Hello @carol1965,

I see that you are concerned about a meningioma. Are you concerned for yourself (or a family member or friend)? What type of symptoms are you (or they), having with this disorder?

Here is some general information from Mayo Clinic's website regarding symptoms, diagnosis, and treatment of meningioma. After reading this information will you post again?
https://www.mayoclinic.org/diseases-conditions/meningioma/diagnosis-treatment/drc-20355648

Hi, @carol1965 - thanks for your post on meningioma. As it's a similar topic to this discussion, "Diagnosed with Meningioma," I've
move your post here so members like @kmart @mkjames @mrector @irishmomz may have some thoughts about how a meningioma can be deemed cancerous or not. I'd also like you to meet @hopeful33250.

Do you have a meningioma diagnosis, carol1965?

Can Drs tell from looking if an meningioma is cancerous or not

So sorry to hear about your diagnosis. I know it is very nerve racking!
I recently had a biopsy on my optic nerve & was diagnosed with a WHO grade 1 ONSM- benign- thank the Lord. I started radiation last week & all is well so far.
Just wondering if by surgery you mean biopsy, or are they planning to surgically remove the tumor? Will you have radiation & what grade have they told your tumor is?
I hope all goes well, I will be praying for you to have a quick, easy recovery. I will be here in Jacksonville for the next six weeks for treatment; would love to meet up & chat if you can. You can never have too many friends in a situation like we are in. ☺️
Rest assured you are at the right place & that the wonderful group at Mayo will take really good care of you. ❤️

Hi Mandy! My name is Melissa James & I was recently diagnosed with ONSM on my right eye. I had biopsy surgery for proper diagnosis before starting radiation this past week. I noticed you said you had surgery to remove part of the tumor, did you have radiation/Chemotherapy for the rest? Wondering how you’re doing & if you’ve regained any of your sight? Hoping you’re doing well & sending prayers & good vibes your way ❤️

Hi back..and think of you often. I have had issues. Bilateral bleed that required emergency surgery (crani and burr hole) three weeks later had another bleed with a midline shift that required emergency surgery and had it in Savannah as I didn’t have time to get to Mayo. Spent 5 days in ICU and hated the ICU at the local hospital. So between December and the middle of March I have had 3 craniotomies and 2 burr holes. So far so good but was told “it is critical that you don’t raise your blood pressure or your heart rate.” I am back at the Y and working out. How is your journey going?? Sending you a hug.