Laryngeal chondrosarcoma recurrence: Anyone had total laryngectomy?

Posted by jane1962 @jane1962, Jul 19 9:45pm

I have been diagnosed with a laryngeal chondrosarcoma which is uncommon in location in which the tumor is growing (behind my left vocal cord). I underwent surgery 2 years ago to de bulk the tumor; however there has since been a reoccurrence and a new tumor is growing. It is classified as a low grade tumor and is not causing problems with breathing or swallowing at this time. One option that has been discussed is a total laryngectomy, I’m just wondering if anyone has been presented with this treatment and if you sought a second opinion about laryngectomy.
Thanks 🙏

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Jul 29 2:51pm

@jane1962, I added your question to the Sarcoma group as well as the Head & Neck Cancers group. I'm tagging @jeffk and @deborahe who have experience with laryngeal chondrosarcoma and can offer support and information. In the meantime, you might also be interested in this discussion:

- Cricoid (laryngeal) Chondrosarcoma: Anyone else? https://connect.mayoclinic.org/discussion/cricoid-chondrosarcoma/

Jane, sorry to hear about the recurrence. I'm sure you're not excited about having to face surgery again. If you'd like to consider a second opinion with Mayo Clinic experts, you can submit a request here: http://mayocl.in/1mtmR63

Have you made a decision about getting a total laryngectomy?

jane1962 | @jane1962 | Jul 29 3:56pm

Thank you very much for the support information. I am currently under the care of 2 surgeons at the University of New Mexico Hospitals who are taking my case to a tumor board as it’s such a rare type of tumor. Based on what I learn after this, I may seek a second opinion at Mayo regarding surgery.