Diagnosed with HCC in a non-cirrhotic chronic Hep B liver

Hello Again Daniel,
So glad to hear you are going to get your HCC removed. Wishing you the very best outcome.

Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and the wnet for another CT scan last Wednesday and I just got the results. Not much has changed, it has grown for 2mm but this could also be within the variability of the scan.

My date for surgery will be Friday 24th (2 weeks from now) It will be probably an minimally invasive surgery and if not possible they will do an open surgery.

I am doing as much as I can do prepare myself mentally and physically for the surgery!

@danieldani, I thought I'd check in. How are you doing? Do you have a date for surgery?

That's my philosophy too! Focus on other things that are happier! Until its time to do it.
I've had endoscopy as well and the worst part for me, is getting an iv .
I'm hoping yours goes smoothly!

Good to hear you are good. The doc wants to to endoscopy to exclude any mestasis they could not see on the MRI. Not looking foward to this but I just let it happen and try not to think about it too much.

Thank you for the support and yes I have a good support system around me where I can talk to. It is different though when I speak to my surroundings compared to support groups like this one. Here everyone understands 100% what you are going through when diagnosed with cancer. Sometimes the waiting and uncertainty can be challenging, I can't wait to go into surgery and fight this cancer.

Hi Daniel. Welcome to Mayo Connect. It is very reasonable for a person to feel unsettled by a new diagnosis like this. It looks like you are getting good input already from the group and your doctors.
Finding someone to share all of this with, can be helpful in processing difficult news like this. Do you have a faith foundation you can turn to , a close friend who will listen and suppoort , or even consider a Chaplain at the hospital you are treated at? Talking about and talking through all of the emotions is important! Hoping things move forward with an improvement in your lab results.

Tired most of the time, but no ascites,edema, itchiness, etc.
I still do have issues with sleeplessness. I also have portal hypertension. But basically, I am good. Blood work is good, no HE or mild if it is HE. I did have esophageal varices but since taking Carvedilol according to last endoscopy they had cleared. I consider myself very fortunate. I am wishing the same for you. It was a shock for me to hear I might need a transplant. Will your doc do further testing to determine the best treatment? Are you at a teaching hospital? It is a journey for sure. I just take it each day one at a time when I get stressed.

Thank you! Good to hear that you are cancer free and I hope it stays like this! I agree, it totally changed my life perspective.

Did you had a lot of symptoms? or like me 'no symptoms'?

Hello Again Daniel,
Yes, I know the feeling well. I was diagnosed with HCC after many years of Hep C infection. Finally cleared it with Epclusa in 2019 but not before my liver became Cirrhotic. I have been on the transplant list for a while now but I did have an ablation to remove the tumor and may be able to come off that list if I stay cancer free. It is a game changer for sure. I must say though, I cherish each day and all the wonderful people in my life more since my diagnosis. Acceptance and fear are good motivating forces to get your priorities straight. Hang in there.
Sue