Diagnosed /w Ameloblastoma. Young Adult

Posted by meadowj @meadowj, Feb 3 7:55am

It originally started as a benign tumor located near my impacted Wisdom teeth, which were promptly worked upon and 'taken care of'. Afterward, they looked into it and monitored me to see if there was any recurrence. Only to confirm with a cancer institute that this was Ameloblastoma and that I would be receiving a major surgery within this year. I feel scared and numb. I am 24yo, female. I'm afraid of so much going wrong. I want to know if anyone else is experiencing this too or has so I can feel less lonely.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

I love William’s comment. “This time next year, you will have a wonderful story to tell.”
Praying you find God’s peace in this trial.

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Hi @meadowj You found the right group. Welcome. There are people here who have also had this rare tumor known as Ameloblastoma. And I know of one who is younger than you who went down a very similar path and is doing well.
Give this forum a little time and others will pipe in. In the meantime, ensure your "cancer institute" has experience specifically with Ameloblastoma, and also with reconstruction if necessary. This is no time for learning or trying, it is do or not do. There are facilities world wide with experience and success in this situation, so please don't hesitate to ask. You should have the best.
If I don't see responses from our Amelo people in the next couple of days, I will prompt them to check in with you. In the meantime just enter Ameloblastoma in the search box at the top of the page and you will find discussions about this. As for me, I didn't have the tumor but I did have the rebuild surgery that often is used in severe cases of Ameloblastoma.
I understand scared and numb. Particularly at your age, nothing bad is supposed to happen. But here you are. This time next year you will have a great story to tell. And as we like to say, scars make better stories than tattoos. For now, brakes on full from a normal life. Better days ahead. Above all: Courage!

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