diagnosed High grade carcinoma neuroendocrine poorly differentiation

Hello @lorinate and welcome to Mayo Connect. It sounds like this is a new diagnosis for you. Is my understanding correct? Can you share where your neuroendocrine is located?

You asked if anyone has experience with this type of cancer. We do have discussion groups where members have discussed this. Here are some discussion groups you can visit to learn more about others' experiences with this diagnosis.

--Stage 4, High Grade Neuroendocrine carcinoma
https://connect.mayoclinic.org/discussion/not-sure-if-i-am-in-the-right-place/
--Stage 4 High Grade Neuroendocrine Carcinoma
https://connect.mayoclinic.org/discussion/stage-four-high-grade-neuroendocrine-carcinoma/
--Husband Diagnosed with High Grade Carcinoma with Neuroendocrine Features
https://connect.mayoclinic.org/discussion/he-was-diagnosed-yesterday/
In these discussions, you will meet @kim2022 and others who have discussed this diagnosis.

Share, as you are comfortable, a little about what symptoms or tests were used to diagnose this type of cancer. Are there any treatment plans in place yet?

I'm sorry you have to go through this. I know how hard it is to get this diagnosis.
This is an excellent place to get information on nets and there are many here who can help.
In addition to this great forum, there is a Facebook group dedicated to high grade NEC that may be helpful
https://www.facebook.com/share/g/1BtNGEi2sf/