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Dercum’s Disease: Let's create a support group

Posted by vowelmistress @vowelmistress, Jun 13, 2022

I am having pain in my feet and ankles. I do have dercum’s and I am wondering if the lipomas in my legs can cause this? Also are there any surgeons in the Eau Claire area who specialize in liposuction for dercum’s patients?

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c3p0 | @c3p0 | 8 hours ago
In reply to @colleenyoung "@ellenbret, you may wish to contact Mayo Clinic in Phoenix to inquire. Here is more information..." + (show)
@colleenyoung

@ellenbret, you may wish to contact Mayo Clinic in Phoenix to inquire. Here is more information about treating lipomas and care at Mayo Clinic.
https://www.mayoclinic.org/diseases-conditions/lipoma/doctors-departments/ddc-20374475
To find out more, you can contact Mayo Clinic either online or by phone. See details here http://mayocl.in/1mtmR63

Is this the new drug you're referring to (CBL-514)?
Novel Fat Reducing Drug Gets Fast Track Status for Dercum Disease https://www.empr.com/home/news/drugs-in-the-pipeline/novel-fat-reducing-drug-gets-fast-track-status-for-dercum-disease/

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Hi Colleen,
I have contacted Mayo clinic for help with Dercum's but they told me it is red target which means they have no treatment for the disease. The only place I know of for specific treatment for Dercum's is in Touscon. Dr. Karen Herbst. I am trying to get approval from insurance to see her. It is a long way for me but I feel it may be worth the trip to see her.

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