Decide against aromatase inhibitors?

Mine was Stage 1 IDC PR/ER + HER2 negative. Clear margins, no lymph nodes, 1.3 cm tumor removed via lumpectomy and same surgery had oncoplastic breast reduction from a almost C cup to an A cup. No radiation, no AI's no chemo and I also declined the Oncotype test. I was 64 when I was diagnosed I'm no 67 and so far so good, clean mammograms since, praying it stays that way!
It's a tough decision but you have to really weigh risk to benefit and see what works best for your particular case. Best of health to you and everyone here.

Did you have an Oncotyoe test. Did it show your risk of distant Metastasis in 5-9 years. Surgery is always 98perrcent. That other 2 percent the way I see it is easily that one or 2 little cells that get away and can lodge somewhere else in your body and show up years later . You could have taken Inhibitors and been so allergic you may have stopped as has been the experience of some . So you cannot say conclusively that you got bone cancer because you did not take the inhibitors. Cancer cells are very tricky and are geniuses. I always imagine them as little parasites always trying to judge my body's next move and find a way around.I had mastectomy for invasive cancer ,clear margins, no lymph nodes involved. My oncotype was high and my oncologist has me on chemo to zap any cells that may have gotten away and also to disrupt the cancer DNA . Is it a guarantee? We won't know till years from now. After researching I wanted to be armed with an option in case AI don't work out for me and the chemo has not been bad at all .

Yes. Unclear margins which turns into a 4 cm tumor. Found by my daughter two weeks after the surgery with bandages all on. My staging changed from 2B to 3B. And from no chemo to max chemo. Strategy being neoadjuvent chemo to shrink the mass to get it out as it was sitting on the ribs.

Mine was Stage 1 IDC PR/ER + HER2 negative. Clear margins, no lymph nodes, 1.3 cm tumor removed via lumpectomy and same surgery had oncoplastic breast reduction from a almost C cup to an A cup. No radiation, no AI's no chemo and I also declined the Oncotype test. I was 64 when I was diagnosed I'm no 67 and so far so good, clean mammograms since, praying it stays that way!
It's a tough decision but you have to really weigh risk to benefit and see what works best for your particular case. Best of health to you and everyone here.

Many thanks and best wishes to everyone! I received a lot of information to think about, I see the oncologist tomorrow and will have plenty of questions. Love to you all!

I had the very same diagnosis with stage 1A, Grade 3, size was 7 mm. I had a lumpectomy in January, 2025. My margins and lymph nodes were clear and I followed with 20 rounds of radiation (that I am not sure if that was a good decision). My Onco score was 22, age is 76. Med Oncologist prescribed Anastrozol which I will not take due to all of the debilitating side effects, age, and research on importance of estrogen.
I was finally seen and listened to by my gynecologist who validated my concerns and reasoning. I now go to a high risk breast clinic.
I prayed hard all through my journey. Prayer gets me through each day along with leaning heavily on the Holy Spirit.
The decisions we must make are so difficult, emotional, and stressful. The doctors are so siloed in their professions, we cannot get needed info until we go through the steps according to the medical protocol.
I am trying to be as toxin free as I can, changing my diet, trying to work in more exercise, filtering my drinking and cooking water, changing my cookware and storage containers, taking supplements, etc.
We are not in control of the span of our life. We can only do the best we can with the knowledge we have.

I had Invasive Lobular Carcinoma breast cancer five years ago. I opted out of all the estrogen inhibitors and after two surgeries, I only had radiation therapy. Now five years later I have bone cancer that has metastasized. It is terminal. I wish I would have taken the estrogen blockers.

I give myself 1 hour to research everyday. The more I dig in, the more I understand the importance of estrogen. It is WILD that AI’s are considered the solution. I am in the process of stopping Zoladex and Letrozole due to the debilitating side effects. I am 43. I am interested in the high risk breast clinic you are in. I wonder if I have a similar option.