Decide against aromatase inhibitors?

Thank you! Just started letrozole and really appreciate you making us aware of this study. I looked for the study quickly and wonder if this is the same one you are referring to:
https://pmc.ncbi.nlm.nih.gov/articles/PMC4740217/

@joyceallen
I truly believe that God encourages us to take proactive steps to help ourselves before turning to divine intervention. It seems like you might be feeling overwhelmed right now. I’m curious about your decision to stop treatment after pursuing surgery and radiation; is there something specific weighing on your mind?
Blessings,
Jake

Thank you.

I'm liking reading all the positive comments. I'm 81 years old. I had a lumpectomy 15 radiation treatments and started Anastrozole about a year ago. So far I have have no side effects that I'm aware of. Trusting in the Lord!

Yes that was the study I stumbled across. I haven't been on it very long, 3 weeks, but so far no problem.

Thank you and everyone who is relaying their experiences, this is exactly what I was hoping for! I wanted to hear the good as well as the bad. I have plenty of time to decide since I need a bone scan before I start taking one and the first available appointment is Oct 30! My appointment with the oncologist is Nov 6. My surgery was May 30, radiation completed on July16. Has anyone else had to wait this long? I must have the bone scan done at the same facility that the first was done at 3 or 4 years ago for accuracy. This is crazy to me, do I need the aromatase inhibitor or not??

Thank you for confirming that is the study. I've been on letrozole about 6 weeks, so a bit longer than you. Have noticed the arthritis in my thumbs is a bit worse but I can still use them. My hair, lost during chemo, is taking its sweet time to grow and the letrozole and/or chemo could be responsible.

Assume you can have serious side effects immediately, down the road at any time, or not at all. But in case things do change for the worse, it's good to have that study in my back pocket for reference.

I have been on letrozole since April. At first I didn't notice symptoms except for an occasional hot flash. But within the last month my hair has thinned significantly and I am starting to have joint pain. I felt stomach issues and have much less of an appetite now than before. I am 70 and had invasive lobular breast cancer stage 1A grade 2 and clean margins with no cancer in the sentinel nodes when I had bilateral mastectomy in February. So my question is will these symptoms subside at some point or get worse? I have to be on an AI for five years. My oncologist said all of the AI drugs have the same side effects so switching to Anatrozole won't make a difference but it sounds like some of you have had better luck changing from Letrozole to it. Any insight out there? I don't think I want to stop them since even with them I have an 8% chance of my cancer returning because my oncotype score was 22. Everyone has to decide for themselves what is right to do but how do we cope with the side effects if they will last so long?

Thanks for information about this study. Did your oncologist agree with this approach? I am wondering if I should share it with mine and see if they would let me take it every other day.

I am struggling with that myself right now. I went from one very young oncologist who just yelled at me when I told her I didn't like the idea of taking AIs, to another more mature oncologist in a different health care system, telling me she wouldn't be my doctor unless I took them. I live in a rural area. It's not easy finding a third one.