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Dealing with our diagnosis/prognosis

Posted by thebobk @thebobk, Sep 9, 2022

Just sharing an interview I did with a patient advocacy group that you may find interesting and useful. Best,

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

sanjaykumar1 | @sanjaykumar1 | Oct 16, 2022

I have been operated for pancreatic tumor whipple surgery in April 2022. One month after surgery my CGA level was 530. Later on in July 22,when tested the CGA level increased to 2250. When it was tested again in October 22 the level increased to 3300. The dota pet scan and MRI of upper abdomen was also done again in October 22 but no abnormal DOTANOC uptake in surgical bed or anywhere else in the body surveyed. Then what is the reason ,that CGA level is increasing day by day? Is there any medication to restrict/decrease it to normal level.

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Colleen Young, Connect Director | @colleenyoung | Oct 16, 2022
In reply to @sanjaykumar1 "I have been operated for pancreatic tumor whipple surgery in April 2022. One month after surgery..." + (show)
@sanjaykumar1

I have been operated for pancreatic tumor whipple surgery in April 2022. One month after surgery my CGA level was 530. Later on in July 22,when tested the CGA level increased to 2250. When it was tested again in October 22 the level increased to 3300. The dota pet scan and MRI of upper abdomen was also done again in October 22 but no abnormal DOTANOC uptake in surgical bed or anywhere else in the body surveyed. Then what is the reason ,that CGA level is increasing day by day? Is there any medication to restrict/decrease it to normal level.

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Hi @sanjaykumar1, please see my response to this same question asked by your son here:
– High or Fluctuating Chromogranin A Level: What does it mean? https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/?pg=6#comment-761776

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