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Dealing with Multiple Sclerosis
Hello, I’m new to multiple sclerosis. I suffer from a lot of discomfort, pain, numbness, tingling and weakness. I was formally diagnosed with MS relapsing, and remitting December 2024, even though I was told I may have it in January 2024. It feels like I have more relapses than remissions. I have started treatment, but seems like I cannot get much relief.
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Hello,
I am sorry you are suffering with this disease, but give it time for any treatment. Not sure what they have you on right now, but definitely talk with your neurologist and if they can't answer to your needs/symptoms, find a new one. Physical Therapy helps me the most and I am on Ocrevus. God Bless!
I don't understand how a neurologist can help someone with scoliosis?
Don't put a lot of faith in the medical system. Be an advocate for yourself and continually look for alternative treatments. There's a lot of money in Pharmaceuticals....too much money to ever find a "cure" for cancer and auto immune diseases.
Hello, I just joined Mayo Clinic. This is my first reach out. Our son, who is 34 was diagnosed with Relapsing Multiple Sclerosis 5 years ago. His first symptom was temporary loss of sight in his left eye. The MRI showed two lesions on his brain. He is not symptomatic. He has been taking Tecfidera 2x day. No additional lesions until last month. A small lesion appeared on top of his brain. His specialist at U of P said it is in an area that will not affect his motor skills etc. but wants to place him on an infusion medication called Briumvi. The infusion is 2x year. Does anyone have experience with Briumvi including any side effects and results. I have done my research on Briumvi but would appreciate any personal experience.
Respectfully,
Barry
Hi, I too have MS. IS Ocrevus working for you? I am hesitant to try anymote medications. None have worked so far. My issue is unbearable pain. Walking is excruciatingly painful so I stay in bed all day.
Hello Sarah, this is Barry from post above. Our son has not started the Ocrevus yet. His specialist from U of P is waiting for additional baseline bloodwork. Our son gets one brain MRI a year which showed the third small lesion. I can only assume he will have another MRI within the year. Not sure what additional tests will be performed to see if Ocrevus is working. As I said above, he does not have any motor skill issues at this point in time. The research I have did on this medication is very positive and optimistic. I will keep you and others interested informed of my sons progress. God Bless.
I promised to keep this group apprised on my son starting Ocrevus. Unfortunately, not good news for us. He started the 10-minute subcutaneous injection last week and he had to stop five minutes into the procedure due to him passing out. My son has an aversion to needles and thought that may have been the cause but the doctors administering the Ocrevus thinks it was an allergic reaction. His Specialist said he should not complete the last five minutes of the injection, and I believe she is going to recommend Mavenclad which my research indicates not as effective as Ocrevus. Specialist visit Sept 9th. Totally bummed.