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Dealing with Multiple Sclerosis

Posted by bwjones85 @bwjones85, Apr 1 6:39am

Hello, I’m new to multiple sclerosis. I suffer from a lot of discomfort, pain, numbness, tingling and weakness. I was formally diagnosed with MS relapsing, and remitting December 2024, even though I was told I may have it in January 2024. It feels like I have more relapses than remissions. I have started treatment, but seems like I cannot get much relief.

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desertdweller22 | @desertdweller22 | Apr 15 8:10am

Hello,
I am sorry you are suffering with this disease, but give it time for any treatment. Not sure what they have you on right now, but definitely talk with your neurologist and if they can't answer to your needs/symptoms, find a new one. Physical Therapy helps me the most and I am on Ocrevus. God Bless!

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knockout2024abc | @knockout2024abc | Apr 16 5:11pm

I don't understand how a neurologist can help someone with scoliosis?

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angielewis1959 | @angielewis1959 | Apr 17 5:33pm

Don't put a lot of faith in the medical system. Be an advocate for yourself and continually look for alternative treatments. There's a lot of money in Pharmaceuticals....too much money to ever find a "cure" for cancer and auto immune diseases.

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barrytiz | @barrytiz | Jul 22 6:09am

Hello, I just joined Mayo Clinic. This is my first reach out. Our son, who is 34 was diagnosed with Relapsing Multiple Sclerosis 5 years ago. His first symptom was temporary loss of sight in his left eye. The MRI showed two lesions on his brain. He is not symptomatic. He has been taking Tecfidera 2x day. No additional lesions until last month. A small lesion appeared on top of his brain. His specialist at U of P said it is in an area that will not affect his motor skills etc. but wants to place him on an infusion medication called Briumvi. The infusion is 2x year. Does anyone have experience with Briumvi including any side effects and results. I have done my research on Briumvi but would appreciate any personal experience.
Respectfully,
Barry

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sarahmdoganieri | @sarahmdoganieri | 1 day ago
In reply to @desertdweller22 "Hello, I am sorry you are suffering with this disease, but give it time for any..." + (show)
Profile picture for desertdweller22 @desertdweller22

Hello,
I am sorry you are suffering with this disease, but give it time for any treatment. Not sure what they have you on right now, but definitely talk with your neurologist and if they can't answer to your needs/symptoms, find a new one. Physical Therapy helps me the most and I am on Ocrevus. God Bless!

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Hi, I too have MS. IS Ocrevus working for you? I am hesitant to try anymote medications. None have worked so far. My issue is unbearable pain. Walking is excruciatingly painful so I stay in bed all day.

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