Diagnosed with DCIS: How do I decide on treatment?

Posted by tctredwell1 @tctredwell1, Aug 23, 2022

I was diagnosed with DCIS. I have to go in for a breast MRI with contrast tomorrow to see how active the cancer is. If it’s contained and not very active, do I have to have a lumpectomy?

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@sakina

I have been diagnosed with DCIS too and have undergone MRI.
I will have to undergo a lumpectomy followed by radiation.
One thing to keep in mind is the positioning for MRI is very uncomfortable. They told me it is the ‘superwoman’ pose! Face down arms extended …. be prepared to stay in that posture for atleast half an hour.
My MRI confirmed the DCIS but it also showed a non mass density for which now I have to undergo another biopsy.
This time it is MRI guided biopsy.
Did anyone else have this?

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Yes - I had more than 1 MRI guided biopsy. It's kinda like "Battleship" the game - they put a grid up next to your breast - then go to the location like: A5 using the MRI. I thought it was more painful than the ultrasound biopsy. A robot did the actual needle stick - I assume the robot got the "depth" correct as well.

Mine turned out to be IDC - so it was invasive. I did a lumpectomy With 21 rounds of radiation, My OncoDX test was 22, so I did not need chemo. I had no lymph node involvement. Wishing you all the best.

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Welcome @tctredwell1, you've come to the right place to connect with other members who have DCIS, like @debra145 @ptown @shelleyc @collielady @jocelynk @goxango @kathyomaha55. They can share their experiences with getting a full diagnosis and deciding on treatments.

@tctredwell1, I'm sure this is all happening so face right now. All the best with your MRI today. I look forward to hear your update when/if you'd like to share.

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If the DCIS is contained and not invasive, you will probably have a lumpectomy but choices about other treatments. It is true that contained DCIS is considered by some to be a pre-cancer so anything you do may be preventative rather than treating an active cancer. You may have an Oncotype test done to help guide decisions.

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I have been diagnosed with DCIS too and have undergone MRI.
I will have to undergo a lumpectomy followed by radiation.
One thing to keep in mind is the positioning for MRI is very uncomfortable. They told me it is the ‘superwoman’ pose! Face down arms extended …. be prepared to stay in that posture for atleast half an hour.
My MRI confirmed the DCIS but it also showed a non mass density for which now I have to undergo another biopsy.
This time it is MRI guided biopsy.
Did anyone else have this?

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I don't what your doctor will recommend but the recommendation will undoubtedly be governed largely the stage of the cancer. Which is determined by several variables, including size of the tumor, whether any lymph nodes are affected and other more qualitative things like location of the cancer and containment of cancer cells. The other factors include the type of cancer which the biopsy will note.

I'm assuming, since you have a diagnosis, that there was at least a biopsy done and the pathology report will yield a lot of information. I'd start by asking whoever made the cancer diagnosis these question. (DCIS is a cancer diagnosis though might be a Stage 0 which some oncologists consider a kind of 'pre-cancer' or possible-to-become-cancer.) And get a copy of any medical record in case you want to get a second opinion. And ask about any testing that can yield more data.

If a lumpectomy is suggested and you're worried about having one, I had one and it was a very simple procedure that healed, in my case at least, scar-free. (A small tumor, excellent surgeon, cancer-free margins.) I have a small scar from the removal of a lymph node that looks like a kitten-scratch and is nearly invisible eleven months later.) I had no pain from the lumpectomy and lymph node removal after discomfort (buy not pain) the first day.

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