Diagnosed with DCIS: How do I decide on treatment?

Posted by tctredwell1 @tctredwell1, Aug 23, 2022

I was diagnosed with DCIS. I have to go in for a breast MRI with contrast tomorrow to see how active the cancer is. If it’s contained and not very active, do I have to have a lumpectomy?

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@rarelybees2889

I may be wrong, but I thought DCIS was a wait and watch thing, with extra testing and clinical breast exams, as its 0 stage?
So sorry you are experiencing this.

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@rarelybees2889 Gm... I heard and read somewhere the same thing you mention. But I don't think many (Me Included) would want to sit around and wait to see what happens. I also found out that, DCIS is non-invasive, but without treatment, the abnormal cells could progress to invasive cancer over time. Left untreated, it’s estimated 20-50 percent of DCIS cases may progress to invasive breast cancer. I would be trying to kick myself knowing I had the chance to have it removed, but instead waited for testing that could take maybe years while my cancer decides to spread slowly taken my life. Have a good day and stay safe

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@melomelbee

I’m so very sorry!!!!
How are you doing with all that?

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I'm doing good. Tired alot.

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@gaili

I had 4mo chemo, lumpectomy, radiation. I still have infusions ( form of chemo) until next summer. Plus a cancer pill.

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I’m so very sorry!!!!
How are you doing with all that?

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@melomelbee

Good morning,
I’m sorry you are going through this. I personally know the feeling.
I was diagnosed with IDC in one breast June 2022. Small tumor, clean lymph nodes.I chose a bilateral mastectomy with reconstruction. I have done so much research and reoccurrence seems to occur with lumpectomy with radiation.
My surgery was 9/13/22 and I have no regrets. My tumor was 95% estrogen and 5%progesterone fed. My oncodx score was 6% reoccurrence in 10 yrs.
I chose not to do AI. There’s too many side effects and don’t want to take on more issues. It is a personal decision and it’s completely up to you and you alone. Don’t feel pressured.
Surgery was painful but you will be surprised on how fast your body heals and recovers.
Let me know if you have any questions. We need to support each other in our journey!
Best of luck!!!

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I had 4mo chemo, lumpectomy, radiation. I still have infusions ( form of chemo) until next summer. Plus a cancer pill.

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@melomelbee

I had all breast tissue removed in both breasts, nipple sparing, with silicone implants.
I wanted all breast tissue gone to lower my risks of any reoccurrence.
The skin is thin on the cancer breast. So they will do some lipo and fill it in. I actually schedule that procedure later this month.
It sounds like when they do the lumpectomy they want to do reduction augmentation to create symmetry. So they will remove tissue from the opposite breast as well so they are close to the same size.
When I was weighing my options I met with the radiation Dr. They wanted to do radiation and lumpectomy as well for me.
She agreed that I am really decreasing my chances of reoccurrence by having a mastectomy and agreed with my decision. That helped tremendously.

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I totally agree with bilateral mastectomy, I choose skin sparing and nipple was removed.
I also had radiation 6/1/2022.
My diagnosis HER2 stage 3 grade 3 and 1 lymph node.
I had a sentinel dissection (removal of 23 lymph nodes)
Cancer free waiting in reconstruction implants with fat graph for Symmetry.
Worth every bit - I will continue to be monitored for 5 years and I don’t stress about the past decisions, just focus on healthy life moving forward.
Not naive just a positive person!
Go for the bilateral mastectomy

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@lvp1122

Thank you, I am feeling at peace and need to get out of my head and have faith in the great physician who knows all.
I like hearing others experiences and thought not necessarily treatment suggestions.

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I was diagnosed at 60 and am now 64. I had four weeks of radiation with little if any problems.

I’ve now been on an AI for over 3 years again, with little to no issues.

I try to walk every day or do some form of exercise, and eat a balanced diet.

We all experience cancer differently. 🙏♥️🙏

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@lmcintosh

Thank you for sharing. I have heard so many what ifs...? I am leaning toward the double mastectomy at this point. Any complications with it and how was your recovery?
Lisa

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Hi Lisa!
I would say it went fine. It is a process, but after 2 weeks I went back to work and I am a physical therapist. Of course with some precautions. I had the expansors and after finishing chemotherapy, I had surgery for my new boobs. The whole process, including chemotherapy, is not a piece of cake, but it is possible. Wishing you the best and a smooth process.

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@lvp1122

Diagnosed 11, 2022, had lumpectomy 12-13-22, met with Radiation oncologist 1-10-23, recommended treatment 4 week Radiation, Hormone therapy.
I am 69 and a 21 year uterine cancer survivor.
I am praying this is right decision for me. Thoughts??

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phillypeach515, omg, I am speechless. Praying for both of our journeys. Thank you so much for sharing. God cover this chaper in our lives 🙏🏽💜

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@lvp1122

Thank you, I am feeling at peace and need to get out of my head and have faith in the great physician who knows all.
I like hearing others experiences and thought not necessarily treatment suggestions.

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@lvp1122 Hello. I was diagnosed also with DCIS in Aug and had the surgery Nov 28th. They offered me Radiation along with taking pills. I don't know what kind of pills yet cause my app is Feb 2. I am still dealing with the surgery some pain and honestly can't even look at my breast but have to because of having to add padding covering to it. I feel depressed at times but with the support of my husband family and friends they make sure I don't get too deep into my feelings. Knowing I have more surgery to go though is taken a toll on me. I know I need to get the plastic surgery done because I feel uncomfortable being around anyone knowing I have 1 breast bigger than the other. I count my blessings every single day even before this had happened to me and look at it where it could have been much worse and spread to my left. So, I am trying to prepare myself for this journey I am on and eating healthy organic foods. I have been on keto diet and really believe that it played a role in my cancer not spreading. (Just saying). I will be praying for you and anyone else that is going though cancer period.

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@lvp1122

Diagnosed 11, 2022, had lumpectomy 12-13-22, met with Radiation oncologist 1-10-23, recommended treatment 4 week Radiation, Hormone therapy.
I am 69 and a 21 year uterine cancer survivor.
I am praying this is right decision for me. Thoughts??

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I may be wrong, but I thought DCIS was a wait and watch thing, with extra testing and clinical breast exams, as its 0 stage?
So sorry you are experiencing this.

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