Diagnosed with DCIS: How do I decide on treatment?

Posted by tctredwell1 @tctredwell1, Aug 23, 2022

I was diagnosed with DCIS. I have to go in for a breast MRI with contrast tomorrow to see how active the cancer is. If it’s contained and not very active, do I have to have a lumpectomy?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

vcafaro | @vcafaro | Feb 20, 2023

In reply to @windyshores "Have you had an Oncotype for DCIS?" + (show)

No, not yet. I have not seen the breast surgeon …I’ll keep you posted.

Langold | @rarelybees2889 | Feb 20, 2023

Thanks for sharing
Mine is LCIS
I wonder how similar they are but maybe not.
LCIS is rare.
Thanks

vcafaro | @vcafaro | Feb 20, 2023

In reply to @colleenyoung "Welcome @vcafaro, you've come to the right place to meet others who have been diagnosed with..." + (show)

Thanks so much for the connection!

jennie23b | @jennie23b | Feb 20, 2023

In reply to @phillypeach515 "@rarelybees2889 Gm... I heard and read somewhere the same thing you mention. But I don't think..." + (show)

@phillypeach515 & @rarelybees2889 ,

I have also read about the " wait and see monitor method" of DCIS. My DCIS was intermediate grade and once the pathology from my lumpectomy came back, it showed that I had 4 microinvasions. Which means that had I chose to not act on it, within the year it would have broken through my milk duct and I would have been stage 1. The microinvasions were already so close to breaking through that I must admit that scared me. In only 365 of my mammogram the DCIS developed, so had I waited even longer I'd be in a whole other conversation. My surgeon urged me to do a lymph node removal to be 100% sure nothing actually did break through and that she got it all. I was all for being 100% positive so I had my sentinal node removed to be tested as well.

Colleen Young, Connect Director | @colleenyoung | Feb 20, 2023

In reply to @vcafaro "DCIS Recently diagnosed - weighing options" + (show)

Welcome @vcafaro, you've come to the right place to meet others who have been diagnosed with DCIS and have faced making treatment options. To help you connect with other members like you, I moved your post to this existing discussion:
- Diagnosed with DCIS: How do I decide on treatment? https://connect.mayoclinic.org/discussion/dcis/

I did this so you can read previous posts and connect with members like @tctredwell1 @sakina @kathyomaha55 @jennie23b @boathouse @phillypeach515 @conk @lmcintosh @celica @lvp1122 and many others. Like @windyshores asks, I'd also be interested if you had Oncotype testing done?

windyshores | @windyshores | Feb 20, 2023

In reply to @vcafaro "DCIS Recently diagnosed - weighing options" + (show)

Have you had an Oncotype for DCIS?

vcafaro | @vcafaro | Feb 20, 2023

DCIS
Recently diagnosed - weighing options

conk | @conk | Jan 15, 2023

I had a lumpectomy four days ago for what was diagnosed as DCIS stage 0. The thought of cancer inside me was far worse than the surgery. I finally looked closely at my breast last night and can't really see any difference in the appearance. I was initially told that I would have radiation, but I don't know when that begins. Since my cancer wasn't estrogen induced, I will not take the meds for 5 years. Yes, I am still worried, but the lumpectomy wasn't that bad. Good luck.