Day 66 of a migraine. What has worked for you?
Day 66 of my first migraine. I’ve been to multiple neurologists and headache clinics and had several ER visits. I’ve tried dozens of otc and prescription meds- nothing has touched it. My pan is a constant 7-8/10 24/7.
Currently on propranolol, gabapentin, memantine, ajovy, migranol otc supplement, magnesium, and daily electrolytes. No rescue meds have touched it.
MRI, CT, lumbar puncture, and many blood tests are all clean.
I’m beaten and debilitated. I can no longer work or function. Please help me! What has worked for you all?
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Try sleep medicine. They put you on a sleep lab and study your sleep cycles. If you are not sleep good daily then that can increase the chances of more migraines.
Good luck.
VJ
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1 ReactionCall the manufacturer. Sometimes you can get it for free.
Lots of good comments here. I’ve had lots of problems with migraines in my life, and the triptans stopped working for me as rescue meds long ago. I’m now on a CGRP antagonist, the newest class of migraine meds. I take an orally dissolving tablet called Nurtec although there are other forms of this class of drugs that have to be given by IV. It has changed my life. It can be taken as a rescue medicine, but I need it every other day as a preventive. It’s not cheap, but if you just need it, your doctor’s office should be able to justify it. It requires prior authorization. I max out my out of pocket limits and at that point, I end up getting it for 0 copay the rest of the year.
Ask your doctor about it as you follow up on the other suggestions folks have had made. Do you see a good neurologist who really understands migraines?
@rjdowdell25
Haven't asked, I didn't realize how expensive when I saw him. But I really think the Vit B2 (riboflavin) is helping. I feel a bad headache starting, and then it fades after an hour. Thats totally new for me.
@purple26 I agree! I don’t know what I’m doing but my headaches are now lessening. I don’t have to take out of my savings to pay for the medication. Have you tried asking your doctor for samples?
@rjdowdell25
Thats crazy, I can't pay that.
@purple26 Ubrelvy is so expensive. I order it from Canada but it still costs a little under $300 for only ten! If I go through my insurance it’s almost $800 ! It’s so unfair.
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2 Reactions@rjdowdell25 It helped to break the cycle.
I saw neurologist last week re: thunderclap h/a March 14 followed by daily headaches (with vision issues) for a month. I only take otc stuff for h/a rated a 5 or greater on pain scale to avoid rebound h/a. Found out the "regular" brain MRI wasn't sufficient, I need to have a brain MRI angiogram. A MRI machine with special software, it can see small to mod size aneurysm better than regular MRI. I had no idea. So danimartinez- I think you should ask for that since migraines are new to you. He also had me start Vit B2(riboflavin), I have felt h/a's start but then they fade. I think its helping. He also ordered Ubrelvy but its expensive, hasn't been filled yet. Good luck
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1 ReactionNothing has helped. Six years/8 mos every single day/all day.
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