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Daughter, 45 anaplastic thyroid cancer. Had surgery, chemo, radiation.
She now has a tracheostomy and feeding tube. FT is finally going ok. But the trach causes Phlem that she has to constantly clear and spit out. It is the bane of her existance. Any one else dealt with this same thing?
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Hi,
I had chemo (doxorubicin once a week for 6 weeks) and 33 days of radiation for anaplastic thyroid cancer. This was after Thyroidectomy and neck dissection during which a tracheostomy was done due to the tumor infiltrating the trachea. I could have had the trach removed prior to radiation but the doctors recommended leaving it in in case of swelling. I am very happy I left it in because the swelling from the radiation was very extensive. I think I would have had trouble breathing had it not been in there. I’m six months post treatment now and there is still some swelling. Luckily I have had no problem with swallowing other than discomfort when eating while going through treatment. I can’t predict for you whether the treatment will affect your mom’s ability to swallow but radiation definitely can cause swelling. I hope this information helps and I hope whatever treatment she receives is successful!
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1 ReactionWelcome, @jeanne4igfh.
Side effects from chemo and radiation for thyroid cancer can be different for everyone. It will also depend on the chemo regimen your mom gets and what type of radiation. @tjmb @swenson @tobyscott @jpuntasecca may be able to share their experiences and tips of how to prepare and things they wished they had known before starting treatment.
Jeanne, does your mom have a symptom management nurse? What type of chemo and radiation will she be getting? How often?
Hi, my mom had her thyroid removed 2011. It had cancer, she had radio active iodine treatment right after that surgery. On 2016 they found some lymph nodes and they removed all and didn’t need any treatment. Now 2022, some lymph nodes was found and had cancer in it. Doctors recommended Radiation and chemotherapy for her. Our concern is that right now she’s having a hard time swallowing when eating and drinking after her surgery couple months ago. If she starts treatment,I’m worried what the effects will be for her. She doesn’t want feeding tube either. Anyone tell me what are the side effects with this treatment? And what can we do for her not to have a hard time while going through treatment?
@tjmb, you may find some tips in these related discussions in the Head& Neck Cancers group and Esophageal Cancer group.
- Saliva and dry mouth https://connect.mayoclinic.org/discussion/saliva-and-dry-mouth/
- Phlegm and Saliva filling in the mouth after tongue sarcoma https://connect.mayoclinic.org/discussion/phlegm-and-saliva-filling-in-the-mouth/
- Excessive Mucus with Esophageal Cancer https://connect.mayoclinic.org/discussion/excessive-mucus-with-esophageal-cancer/
While members share about different cancers than your mom, the radiation side effects have similarities. Does your mom have a symptom management nurse?
Hello @tjmb,
I'm sorry to hear that your mom is still unable to swallow. How difficult for her! I hope that her cancer doctor can give you some answers at your next appointment.
I would appreciate hearing from you again. Will you post an update after your mom's appointment?
She has a feeding tube in. But she is to the point where she can’t swallow anything. I know this takes time to heal. We see her can cancer doctor this week. Hopefully he has some suggestions
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1 ReactionHello @tjmb and welcome to Mayo Connect. I'm so sorry to hear of your mom's extensive surgery and her post-surgery problems. It must be very difficult for her and you. How long ago was her surgery?
Is her swallowing problem the result of a closure of the esophagus? What types of therapies, if any, has her doctor suggested for the swallowing problems?
My mom has anaplastic thyroid cancer had surgery took both side of thyroid out had lymph nodes taken about 30 of them. Had radiation and chemo for 6 weeks. She is done with chemo and radiation has a feeding tube in . She has so much flem and dry mouth. She can’t even swallow water without it coming out. Was wondering is there something that can help her?
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1 ReactionI wish your daughter well with both her PET scan and esophagus procedure. Waiting for the results of the scans is always very stressful. I was lucky and have been able to eat snd drink normally since the beginning. The tracheostomy has been my biggest issue. Of course the cancer is a big worry but at least without the trach i can otherwise live my life normally. Please keep us updated with your daughters progress. We have to remember to celebrate the baby steps.
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3 ReactionsOmgosh! I thought my daughter had replied to Toby scott with her dates wrong. Your and her situation are nearly identical. She goes for PET scan next week to Mayo. November 7th she will hopefully have the first attempt to stretch her esophagus so she can begin to swallow. Hasn’t swallowed anything since February. Hoping and praying!
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