Anyone have Cutaneous T Cell Lymphoma?

Posted by cindylb @cindylb, Jul 28, 2017

Does anyone in the group have Cutaneous T Cell Lymphoma? I am waiting for an appointment with my oncologist (follow up for breast cancer) and am at possible risk for this cancer. I'd like to hear from anyone who has experienced these symptoms, how they got their diagnosis and what treatments they have or are having. Thank you.

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Hello @cindylb,

Thank you for starting a discussion on cutaneous t cell lymphoma. If you don't mind, would you be comfortable sharing a few more details about your possible diagnosis?

First off, I hope your treatment & diagnosis of breast cancer are going well. Did your medical provider say you are at a higher risk for lymphoma because of your breast cancer, or have you already shown signs and symptoms of lymphoma? I would like to invite a few members who have or had lymphoma. While it may not be the same type of lymphoma, they may be able to offer some insight. @travelgirl, @carlos12, @craigkopcho, and @kjs1015 all discussed having varying types of lymphoma and treatments they underwent and may be able to offer some of their symptoms and treatments.

@cindylb, how soon is your followup with your oncologist?

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