Anyone have Cutaneous T Cell Lymphoma?

curcumin is a compound in the spice turmeric. it only comprises about 5 percent of turmeric. it has most of the medicinal properties of turmeric. That is why curcumin in tablets is used.

I had the same thing on my neck. It was large. Had radiation and started taking curcumin on my own. Had two pet scans since. No detectable follicular lymphoma since. Over two years. another pet scan in a year.

What is curcumin? Prescription or natural thing?
Pam

Wow, what an endeavor for you. Amazed you had no symptoms. Scary! I've had two strokes and lots of blood clots and two heart attacks. I've lost track of the multitude of CT's I've had. Sure hope the next DX isn't Cancer. (Hoping there is none) X ing my fingers. I wish you well and no more DX for you either!
Pam

I have stage 3 follicular lymphoma. Mine was found while doing a CT Scan prior to surgery for stage 1 cecum cancer. I had zero symptons for either cancer. I have perfect blood work and no visual swollen lymph nodes. The swollen lymphes they found were next to my Aorta.. They did a CT guided biopsy of the nodes to determine the lymphoma. When they removed 1 foot of my colon they took 30 lymph nodes. Some of those as well tested positive for lymphoma. I was getting CT scans every 3 months for 1 year. I did not take any medicine. Just some added vitamins for 6 months only, the lymph nodes went down in size on there own. I go next month again for a CT scan. Lets see if by doing nothing they have continued to shrink? This is actually my first time of having a CT scan taken at 6 months..

I too have been diagnosed with follicular lymphoma. I just had my first pet scan since coming to mayo in April for a 2nd opinion. The pet scan showed better results than the Ct scans I had done at my previous clinic. I just had a bone marrow biopsy and if that comes back clean then I can have a low impact radiation treatment on the affected nodes in my neck. I think the curcumin is probably helping. I take that as well.

I have follicular lymphoma . I had radiation for a tumor on my neck.and groin over two years ago. Since then on my own I have been taking curcumin. Cancer has been undetectable for over two years now. I might have a natural remission or curcumin might be helping. I have a pet scan scheduled again in a year.Time will tell.

Thank you so much for the extra information. I'm sorry your travels resulted in a bad memory/outcome. I love to travel but perhaps will skip the adventurous eating after reading your story. This helps me a bit, so I appreciate you sharing. I have read that they are linking certain lymphomas (possibly) to H-Pylori and EBV. I have EBV and mild symptoms of it that may be causing my symptoms. Now on to some tests to determine if the virus has caused this additional cancer or if my skin rash is caused by something that is not cancer. And you are so right....once they tell a person they have cancer you grow 'cancer radar' that spikes each time your body does anything new. I guess it's inevitable.

@cindylb I should also tell you I have stage 3 Follicular lymphoma without any symptoms.. Whatever that means???

@cindylb I had ZERO Symptoms.. I had caught H-Pylori in some third world country. That is where my symptoms started which included severe acid reflex, stabbing chest pains, and thinking something I ate was poison. My throat was on fire from my tonsils clear to my stomach. Plus I had an aching stomach pain on and off on my right side. The DR ordered me to have a Endoscope and a Colonoscopy. They found an Ulcer in my Cecum which ended up being a stage 1 cecum cancer.. u get zero symptoms with cecum cancer till it is stage 4 and then when they did a CT Scan, I had swollen lymph nodes in my chest all around my aorta. They needed to sample the lymph nodes to rule out that the cecum cancer had spread. And BAM just like that I got the 2 for 1 double trouble special. Zero Symptoms on either cancer. As a matter of fact my blood work is perfect too.. Both found by my adventurous life style eating some contaminated food in a 3rd world country... The hardest thing for me is reminding myself I am healthy.. Every ache pain, sniffle, hot spell and sore muscle, I assume is a cancer symptom... That is the messed up part of lving with cancer...