Cushing’s syndrome

Posted by natrele @natrele, 1 day ago

Im diagnosed with Cushing’s syndrome. It’s rare and I would like to hear of anyone else’s experiences with it. Also has anyone been subscribed Korlym for it?

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

Cheryl, Volunteer Mentor | @cehunt57 | 1 day ago

@natrele welcome to Mayo Clinic Connect. I do not have Cushing’s syndrome. I don’t know what Korlym is. Hopefully other members will respond soon that have experience with Cushing’s syndrome and are familiar with Korlym. You are not alone.

Colleen Young, Connect Director | @colleenyoung | 7 hours ago

Hi @natrele, I'm tagging fellow members like @monarchbfly @j77 @astaingegerdm @jmb73 who have experience with Cushing's disease.

Natrele, have you started treatment with mifepristone (Korlym)? How is it working for you?

monarchbfly | @monarchbfly | 6 hours ago

In reply to @colleenyoung "Hi @natrele, I'm tagging fellow members like @monarchbfly @j77 @astaingegerdm @jmb73 who have experience with Cushing's..." + (show)

Hi,
Mine wasn't Cushings. It ended up being long vaccination syndrome. It started with the Covid vaccine in April 2021, then I became extremely ill within 60 days of receiving a Tdap booster in July 2022. Best wishes of good health to you!

natrele | @natrele | 3 hours ago

In reply to @colleenyoung "Hi @natrele, I'm tagging fellow members like @monarchbfly @j77 @astaingegerdm @jmb73 who have experience with Cushing's..." + (show)

I took Korlym for a short time. Then I started feeling sick. I’m not taking now but doctor seems to think I need too. I might try a low dosage some day. I’m taking ozempic. Have lost 40 lbs.