Cushings Disease - What were your cortisol and ACTH test results?

Posted by monarchbfly @monarchbfly, Apr 16 12:14pm

Hello,
Long story short, I have been tentatively diagnosed with Long Vaccination Syndrome by my neurologist. Mainly because no other doctor can figure out my symptoms. As part of my symptoms, an endocrinologist is now testing me for sub-clinical Cushings Disease because my cortisol and ACTH blood tests came back slightly higher than normal. I have a few symptoms that match, and many that don't. My morning cortisol blood test result was 26.8 mcg/dl (normal 4-22). My ACTH blood test was 60 pg/ml (normal 6-50). I have low blood pressure and HR, but I also exercise. I've had weight gain and I'm very sensitive to hot and cold temperatures. I have normal blood sugar, and if anything, it is on the lower side. If you were diagnosed with Cushings Disease, what were your test results? I don't think mine are high enough to qualify for Cushings, but I don't know how high these levels can get.

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Good luck, tomorrow! I hope the doctor has some kind of news for you. Anything that could help you figure this out. I sometimes wonder if my body relies on estrogen to keep it functional. I may try hormone therapy again. The only other thing was right before I got sick, I had a round of antibiotics and was also taking probiotics at the same time so it didn't wipe out my microbiome. Wondering if that had anything to do with it. I'm totally grasping for straws.

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@monarchbfly

Good luck, tomorrow! I hope the doctor has some kind of news for you. Anything that could help you figure this out. I sometimes wonder if my body relies on estrogen to keep it functional. I may try hormone therapy again. The only other thing was right before I got sick, I had a round of antibiotics and was also taking probiotics at the same time so it didn't wipe out my microbiome. Wondering if that had anything to do with it. I'm totally grasping for straws.

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Thankyou so much!I hope so too.I wonder if I should go on Hormone replacement too.At this point I would do anything to feel better.I was just looking up hormonal diseases.There are just so many diseases.I feel like I have symptoms from each one.If my Doctor mentions anything I will let you know.I am sorry you are going through this too.No one should have to deal with this.

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