Hello I was officially diagnosed last week with CRPS after 16 months of being sent back and forth between Podiatry, Ortho, and Neuro doctors.
Sept 2017 I fell and had an avulsion fracture. This didn’t heal and I was in a boot for 11 months before I finally had surgery Aug 2018. Surgery fixed the FX and ligaments but I never regained dorseflextion of my ankle. After EMG and MRI all coming back fine, they finally called it CRPS. My PT has been telling me I have CRPS since Feb 2018 but my drs wouldn’t officially diagnose.
Before surgery I didn’t have any nerve related pain. Just no dorseflextion, severe aching pain, and extreme swelling. After surgery all of the nerve pain started and has continued. I now also get muscle spasms, and electrical shocks through out my entire body, and I have a constant buzzing feeling in my injured foot and leg.
Neuro put me on Lyrica which was helping once I was at 600mg, taking it 3 times a day. But 6 weeks into taking the meds I started itching all over my body and after prednisone and the itch coming back they said I was allergic to the meds. I was weaned off the meds in a week, and was put on Trileptal. 600mg, taking it twice a day.
I’m a week into the meds and I’m still itching all over. It had slowed down and almost stopped when I was weaned off the Lyrica and then off it for 3 days. And now that I’m 7 days on these new meds I want to rip my skin off again. But tonight while it’s getting worse it feels more like tingling itchy then actually itching. On top of the meds not helping with the pain. I’m going to call the dr tomorrow but he didn’t want to listen to me about the itch and sent me to my PCP the first time. I feel like this is nerve related but he insisted it wasn’t.
So my question is has anyone else been itching cause of the CRPS. Could this be a symptom of that or is it truly due to the meds and if so where do I even go from here. I feel like I’m losing my mind. I have black and blues all over my body because I’m scratching so much.
Liked by rsnowflake