CRPS - anyone suffering with complex regional pain syndrome

Posted by pfox @pfox, Jul 14, 2017

I am new to this forum- my 40 year old daughter suffers from CRPS that has spread to whole body - her nerves are on fire... it is attacking her digestive system too where she has severe GERD. She goes to Pain Management doctor, gastrointestinal doctor and has wonderful PT that helps to loosen her tense muscles which can eventually atrophy. this was recognized in 2014 as a rare disease by CDC but her chronic pain is intense... we keep searching for help and guidance... since many do not understand this horrible affliction.... thanks for any advice....

Interested in more discussions like this? Go to the Chronic Pain Support Group.

missbiss | @missbiss | Nov 7, 2020

In reply to @faithwalker007 "Which type of CRPS do you have?" + (show)

Type 2

Faithwalker007 (Renee) | @faithwalker007 | Nov 8, 2020

That is what the DEA has done to Pain care in Wyoming. We are down to 5 major clinics and less than 15 Pain specialists for the entire state.

Hank | @jesfactsmon | Nov 8, 2020

In reply to @faith88 "Please help me how do I get the emails to stop it is way too much..." + (show)

@faith88
To stop the emails first go into "Profile and settings" from the upper right corner of the page you are on. From that menu click on "Account Settings" and then under "Notifications" you will see "Disable all email notifications". Click Edit. Then click on "Turn off all email notifications". Then the emails will stop. Best, Hank

lioness | @lioness | Nov 8, 2020

In reply to @faithwalker007 "That is what the DEA has done to Pain care in Wyoming. We are down to..." + (show)

@missbiss Let's pray when our new President takes office he will have some influence on the DEA

lioness | @lioness | Nov 8, 2020

In reply to @jesfactsmon "@faith88 To stop the emails first go into "Profile and settings" from the upper right corner..." + (show)

@jesfactsmon Hi Hank didn't you read my post as to how to stop emails

Faithwalker007 (Renee) | @faithwalker007 | Nov 8, 2020

In reply to @lioness "@missbiss Let's pray when our new President takes office he will have some influence on the..." + (show)

Not holding my breath

lioness | @lioness | Nov 8, 2020

In reply to @faithwalker007 "Not holding my breath" + (show)

I know first pandemic has to get vaccine

lorirenee1 | @lorirenee1 | Nov 8, 2020

In reply to @faithwalker007 "That is what the DEA has done to Pain care in Wyoming. We are down to..." + (show)

@faithwalker This is sickening, Renee. Just sickening. No wonder you are traveling for hours. Terrible. Lori

lorirenee1 | @lorirenee1 | Nov 8, 2020

In reply to @faithwalker007 "Mine is type 2 as well. The surgeon severed my lumbarsacral plexus in my right hip..." + (show)

@faithwalker Renee, God in Heaven, I would just hug you to pieces, except I fear I would hurt you! My heart and soul goes out to you. You have done so many great things with your life, Renee. More than most people ever do. And here you are, just suffering. My heart hurts, reading you. Just hurts. What can I even say? Lori Renee