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CRPS

Posted by gus0557 @gus0557, May 12, 2025

Hello,
Has anyone been diagnosed with Complex Regional Pain Syndrome Type 2? I was just diagnosed with it today in my entire right shoulder on top of my peripheral neuropathy. I might going for a Peripheral Nerve Stimulation implant since there is evidence of nerve damage as the cause. Any insights from anyone?
Thank you and take care,
gus

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Mentor
John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @crpsneridronate "@asteeleks I’m sorry you’re going through this. One thing I’ve learned while researching CRPS is how..." + (show)
Profile picture for crpsneridronate @crpsneridronate

@asteeleks I’m sorry you’re going through this.

One thing I’ve learned while researching CRPS is how important it is to have the diagnosis confirmed using the Budapest Criteria by a physician familiar with the condition.

Many patients spend years trying different pain management approaches without ever discussing all of the evidence-based treatment options available internationally.

Even if someone ultimately decides not to travel for treatment, I think understanding every available option allows patients to have a much better conversation with their own specialist.

Wishing you the very best.

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Hello @crpsneridronate, Welcome to Connect. Thank you for sharing your experience. I was not familiar with the Budapest Criteria for diagnosing CRPS. Since new members are not allowed to post links for a short period of time, I thought I would share a few references for others who may not have heard of the criteria for diagnosing CRPS.
-- Appendix 3Research diagnostic criteria (the ‘Budapest Criteria’) for complex regional pain syndrome: https://www.ncbi.nlm.nih.gov/books/NBK464482/
-- How is CRPS Diagnosed?: https://www.burningnightscrps.org/crps/crps-information/how-is-crps-diagnosed/

How long have you been dealing with CRPS?

REPLY
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crpsneridronate | @crpsneridronate | 1 day ago

Hey John, I didn’t mean to violate any community rules. In fact, I created an account when I came across this post to reply. So, please don’t mind. Eight years ago, when I was first diagnosed with CRPS after wrist surgery, I went through a very difficult journey. Since then, I’ve dedicated some time to raising awareness for other patients in pain. Thank you for sharing these links, and I appreciate your time in acknowledging my response.

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1 reply
Profile picture for John, Volunteer Mentor
Mentor
John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @crpsneridronate "Hey John, I didn’t mean to violate any community rules. In fact, I created an account..." + (show)
Profile picture for crpsneridronate @crpsneridronate

Hey John, I didn’t mean to violate any community rules. In fact, I created an account when I came across this post to reply. So, please don’t mind. Eight years ago, when I was first diagnosed with CRPS after wrist surgery, I went through a very difficult journey. Since then, I’ve dedicated some time to raising awareness for other patients in pain. Thank you for sharing these links, and I appreciate your time in acknowledging my response.

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@crpsneridronate - You didn't violate any rules! We just love to welcome new members and it's great when they are helping to raise awareness of what can help others who are struggling with a condition. Just wanted to let you know that new members are prevented from sharing links for a short period of time to keep spammers from posting advertising and other stuff. Thanks for joining our community!!

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