Crps, 4 yrs spreading everywhere

Posted by shannon1218 @shannon1218, Aug 20, 2021

Was told by my pain doc, would need to check into mayo clinic! How does one heal from surgery of pain pump or spinal stimulator? Help, im in ky

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Hello @shannon1218. Welcome to Connect. I'm terribly sorry to hear of your discomfort. When did you have your pain pump or spinal stimulator implanted?

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@rwinney

Hello @shannon1218. Welcome to Connect. I'm terribly sorry to hear of your discomfort. When did you have your pain pump or spinal stimulator implanted?

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No ive had everything thing else, but those 2 things, I was wondering I can't even have teeth cleaned, how does one with crps as bad as I have go through the surgery and pain afterwards if you get the pump or stimulator put in, and I haven't found many good results with the spinal cord implant with someone like me that it has spread and had for 4 yrs? Ty for your response!

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@shannon1218

No ive had everything thing else, but those 2 things, I was wondering I can't even have teeth cleaned, how does one with crps as bad as I have go through the surgery and pain afterwards if you get the pump or stimulator put in, and I haven't found many good results with the spinal cord implant with someone like me that it has spread and had for 4 yrs? Ty for your response!

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I understand your frustration and concern of future pain with CRPS. Have you ever considered Mayo Pain Rehab Center, for a completely different approach to pain management?

I have Central Sensitization Syndrome (CSS) which is a similar chronic pain syndrome to CRPS. CSS is an upregulation of the central and peripheral nervous system, where louder signals are received in the brain. Sensors become oversensitized and the body amplifies pain and sensory, like a speaker.

Here's a link on CSS presented by Mayo's, Dr. Sletten. You may find it helpful – https://youtu.be/8defN4iIbho

Also, a link for Mayo Pain Rehabilitation Center.
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Will you let me know your thoughts?

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