Want to talk with others. Have you found relief from CRPS?

Posted by mam14 @mam14, Feb 4, 2019

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Have you tried Ketamine infusions?

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Scrambler therapy did me wonders!!

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@rsnowflake

I was diagnosed a little over a year ago. It started after a broken ankle. It never really healed. Got purple and blue..really bizarre. Went back 2 orthopedic surgeon and he knew someone who studied crps for 2 years at Jefferson hospital in Philadelphia. I was very lucky 2 get diagnosed early, but it all went down hill after that. I got a nerve blocker on my leg. It worked great. Unfortunately it jumped quickly 2 my arm about a month after the nerve blocker. I didn't get that lucky that time....it got really bad and nothing worked. So I got a spinal implant. Sounds scary, but saved my hand!!! They put 2 leads in in case it jumped 2 my other arm...which it did. I use an ipod to control my pain day 2 day. Weather plays a big part of good and bad days, and so is stress. So try and find something just for u 2 do on those rough days..... really! I'm a 45 year young woman and I'm coloring to calm me down and I listen to music and tune out the pain. Would like to talk more I'm rsnowflake!

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Good for you! Focusing on what I CAN do instead of what I can no longer do also. I line up “projects” that I can do and try to retain the great memories of athletics I enjoyed throughout my life…my daily life remains full. My projects have to stay out so I can move from sewing to wood projects, cleaning to menu planning, and now I’m learning to knit 🧶 on Utube. Mostly to keep my mind focused on something besides pain. Stretching, strengthening and meditation throughout the day

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@sweetmommap22

Have you tried Ketamine infusions?

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Yes, The series of Ketamine helped me climb out of a deep depression years ago

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There is a wonderful positive support group on Facebook Positivity Rsd/crps.org. I do Ketamine infusions and use the nasal spray in between boosters. The group has a nightly video. We go over books one chapter each night. The founder was in bed over 20 years. Amazing how she is now . We have a lot of fun and laugh. I have had 2 failed Spinal cord stimulators. They are great for some neuropathies, but never crps. I have type 2 from direct hit nerve damage. X husband caused it. The files in the group have loads of information. I have tried everything. The group saved my life. Hope you check it out. Your friend, Doreen

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Thank you, hope to see you there!
Hugs, Wendy

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