Crohn's and Linzess/Constella

Posted by skypledger @skypledger, Nov 19 3:05pm

I’m on Trulance 3 mg which I take in the morning with a glass of water. Then I have coffee followed by fiber rich cereal and fruit. On the afternoon I take MiraLAX with water. Some days it works great other days nothing. Presently it’s been 2 days since I got relief. I’ve been under stress which doesn’t help. Anyone have suggestions?

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skypledger | @skypledger | Nov 19 3:06pm

I have IBD-Crohn’s. BTW

Lisa Lucier, Moderator | @lisalucier | Nov 24 2:28pm

In reply to @skypledger "I have IBD-Crohn’s. BTW" + (show)

@skypledger - thanks for clarifying your diagnosis as irritable bowel disease - Crohn's. Being stressed and not having any bowel relief sounds quite unpleasant.

I'm tagging a few Mayo Clinic Connect members who may have familiarity with Crohn's and/or with constipation who may have some suggestions for you to get some relief @sickofbeinsick1 @gshlager @brendaharvey @sandyjr @marion49 @gshlager. I'd also like to invite @hopeful33250 into this conversation.

skypledger - have you found any differences in your bowel habits with what you have for breakfast or with which and how much liquid you intake?

Teresa, Volunteer Mentor | @hopeful33250 | Nov 24 9:05pm

In reply to @skypledger "I have IBD-Crohn’s. BTW" + (show)

Hello @skypledger

Many people with IBD (or IBS) find the FODMAP diet helpful. Here is a link to a Mayo Clinic news feed with an explanation about this eating plan.
https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/a-map-for-the-fodmap-diet/
Have you tried this?

skypledger | @skypledger | Nov 24 10:30pm

In reply to @lisalucier "@skypledger - thanks for clarifying your diagnosis as irritable bowel disease - Crohn's. Being stressed and..." + (show)

@lisalucier Yes, I have noticed if I have either oatmeal cooked with extra liquid or Fiber One cereal with a lot of fruit, that I have better results. I take Trulance when I first get up with a glass of water. Then coffee. Then breakfast. Any variation such as morning appointments throws everything off and increases constipation. This is very limiting. I also take MiraLAX in the late afternoon. I also have diverticulosis throughout my large intestine.

skypledger | @skypledger | Nov 24 10:44pm

In reply to @hopeful33250 "Hello @skypledger Many people with IBD (or IBS) find the FODMAP diet helpful. Here is a..." + (show)

@hopeful33250, yes I tried the FODMAP early after diagnosis. I have found that many foods on the Low FODMAP diet cause me problems. I pretty much know the foods which are problematic. Vegetables need to be well cooked. Eating beef steak is out! I get protein from pork (not cured), fish (especially salmon), seafood, eggs, collagen powder, yogurt. Most fruits are okay.