Creaky body, some bone pain - new since thyroidectomy?

Posted by kmlnj @kmlnj, 1 day ago

Hi. I did search to see if this has been asked.
I am post thyroidectomy & neck dissection. Post 35 radiation treatments and 6 chemotherapy. I take levothyroxine.
The issue is my legs ache. In truth, my whole body aches. My endocrinologist said its not her area of expertise to address this.
The aching is new. But I am 72.
Last calcium check months ago was 9.
Thoughts? What course of action, self healing?

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I'm 67- and yes I ache too. At my age, so hard to tell whether it is arthritis (which I have) or related to thyroid removal/RAI. (2.5 years ago)All I know is I don t feel as good as I used to, that this is my new reality. I choose to still walk close to 3 miles most days, and I find this helps both mentally and physically. Arthritis tyleno also takes the edge off...even though I try not to take that too often. I don t know if this helps but I wish you well...

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Thanks sweet tooth.
I was looking at my notes and I did not have this bone tiredness in may. So perhaps it is a latent effect.
I am trying to stay on my feet more. I walk about a mile a day. I will increase that.

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That sounds like too much T4 to me. You can't just use TSH, sometimes that alone isn't good enough. Too much T4 and I for sure get all kinds of issue, and pain I get is shoulder pain. I take Armour Thyroid now, don't have that issue. Armour isn't once a day, you divide dose up so it differs from T4 only.

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I also had intensely aching legs that lasted for a number of months and kept me up at night. Mine started probably two and a half years after my total thyroidectomy. All of my thyroid numbers were stable, and neither my PCP nor my endocrinologist had any idea what might be causing it. Being also of a an advanced age 😄I had no idea whether it was something just related to arthritis and aging. Here are some things I tried. I started wearing over the counter compression socks (not the real heavy duty ones) during the day and that made my legs feel much better during the day. I did not wear them at night but it seems like wearing them in the daytime reduced the aching at night as well. I asked my physical therapist at our last session (I was finishing up some physical therapy for my back) if he had any suggestions for the leg aching and he gave me some exercises to do with a pretty heavy duty stretch band. They only took about 5 minutes a day but I think that those helped as well. And I found a deep muscle therapist (and I mean deep) who worked intensely on my tight leg muscles over several months. The leg aching currently is mostly gone (knock on wood). My husband has had similar leg pain and his doctor had him massage an OTC magnesium gel into his legs. He swears by it. Maybe some of these ideas would be worth a try?

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I posted a similar question a couple of months ago. Bad leg pain, muscle ache, fatigue, weight gain. My endocrinologist basically blew me off and said that none of it was related to my thyroidectomy. I explained to him that I did not have any of this prior to my surgery. He of course, said, based on the TSH levels that was not the reason for my symptoms. I was definitely dismissed. I sent an appointment with my rheumatologist, and she said that the thyroid could possibly be related because anything can happen. I’ve been to a functional Doctor Who prescribed all sorts of supplements. I hear all of your frustration and wish I had answers for all of us.

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@gillsden

I posted a similar question a couple of months ago. Bad leg pain, muscle ache, fatigue, weight gain. My endocrinologist basically blew me off and said that none of it was related to my thyroidectomy. I explained to him that I did not have any of this prior to my surgery. He of course, said, based on the TSH levels that was not the reason for my symptoms. I was definitely dismissed. I sent an appointment with my rheumatologist, and she said that the thyroid could possibly be related because anything can happen. I’ve been to a functional Doctor Who prescribed all sorts of supplements. I hear all of your frustration and wish I had answers for all of us.

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Thank you. Your experience is very helpful. I did Google supplements. But I don't want to take them. I am being more consistent with calcium intake and supplements.
I try to stay on my feet more.

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@deborah1031

I also had intensely aching legs that lasted for a number of months and kept me up at night. Mine started probably two and a half years after my total thyroidectomy. All of my thyroid numbers were stable, and neither my PCP nor my endocrinologist had any idea what might be causing it. Being also of a an advanced age 😄I had no idea whether it was something just related to arthritis and aging. Here are some things I tried. I started wearing over the counter compression socks (not the real heavy duty ones) during the day and that made my legs feel much better during the day. I did not wear them at night but it seems like wearing them in the daytime reduced the aching at night as well. I asked my physical therapist at our last session (I was finishing up some physical therapy for my back) if he had any suggestions for the leg aching and he gave me some exercises to do with a pretty heavy duty stretch band. They only took about 5 minutes a day but I think that those helped as well. And I found a deep muscle therapist (and I mean deep) who worked intensely on my tight leg muscles over several months. The leg aching currently is mostly gone (knock on wood). My husband has had similar leg pain and his doctor had him massage an OTC magnesium gel into his legs. He swears by it. Maybe some of these ideas would be worth a try?

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Leg aching! Yes. Mild during day and moderate at night.
I will try your ideas.

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@kmlnj

Leg aching! Yes. Mild during day and moderate at night.
I will try your ideas.

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I hope one of them helps. Let us know.

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